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Blog
Insights on Important Issues in our Community
Honoring Niemann-Pick Caregivers during National Family Caregiver’s Month
November 22, 2023
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Quinn Madeleine Foundation
November 2, 2023
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NNPDF is turning the Impossible into Possible through your support.
October 12, 2023
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Celebrating Family Strength During Niemann-Pick Awareness Month
October 11, 2023
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Niemann-Pick Awareness Month – Social Media Toolkit
October 5, 2023
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The Importance of Newborn Screening for Niemann-Pick Disease
September 29, 2023
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Unlocking the Potential of Digital Health Solutions for Rare Disease Communities
September 27, 2023
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Honoring and Supporting Men Who Serve as Caregivers
June 13, 2023
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NNPDF signs on to Texas Rare Disease Advisory Council
April 24, 2023
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Supporting the Niemann-Pick community in an era where treatments are possible
April 7, 2023
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The Impact of Dysarthria
March 31, 2023
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NNPDF is Showing our Stripes for Rare Disease Day 2023
February 28, 2023
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Elevating Community Voices During Rare Disease Awareness Month
February 6, 2023
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The Assistance Fund – ASMD Financial Assistance Program
January 17, 2023
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The Benefits of Having a Great Local Care Team
December 6, 2022
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Global Niemann-Pick Disease Awareness Day: The International Fight Continues
October 21, 2022
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Celebrating #NiemannPickChampions during Niemann-Pick Awareness Month
October 10, 2022
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Message from the Executive Director
October 2, 2022
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NNPDF Celebrates Monumental Milestone with the First U.S. Approval for ASMD
September 5, 2022
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In the Spotlight with Pam Andrews
May 20, 2022
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Message from NNPDF on arimoclomol
May 19, 2022
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Adult Onset Niemann-Pick type C (NPC)
April 28, 2022
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In the Spotlight with JP De Douza
April 15, 2022
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Message from the Board Chair
March 30, 2022
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Remaining Hopeful About NPC Research
March 28, 2022
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Qualitative Study Highlights Need for Increased ASMD Caregiver Support
March 26, 2022
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The Journey to Diagnosis in Rare Disease
March 12, 2022
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We are showing our colors for Rare Disease Day 2022
February 28, 2022
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In the Spotlight with Ashley Lewis
December 29, 2021
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Message from the Executive Director
December 26, 2021
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All States Must Recognize That Rare Diseases ARE Different
November 16, 2021
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Scientific Reports: Impact and burden of acid sphingomyelinase deficiency from a patient and caregiver perspective
November 3, 2021
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Awareness, innovation shape future for those living with rare disease, ASMD
October 24, 2021
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Rare disease patient communities deserve access to data from failed clinical trials
March 1, 2021
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