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Family Resources

Information for Families

The National Niemann-Pick Disease Foundation supports individuals and families affected by Niemann-Pick disease. Our support covers a wide range of needs that occur at various stages of the Niemann-Pick journey. We offer referrals to assist with diagnosis and treatment of NPD, guidance for care of individuals with NPD, assistance to families caring for loved ones with the disease, educational tools, and even information on insurance matters and legal issues.

Our website is continually updated, but if you don’t find what you’re looking for, please contact the NNPDF.


Supporting one another. Supporting our community.