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Family Experiences

Real life experiences from real people living with the affects of Niemann-Pick Disease

Evren and Kara Ayik – Evren is a recent high school graduate who lives in Merced, California, and who has ASMD. He plans to start Fresno State University this fall to become a special education teacher. His mother Kara likes to encourage him to stretch his wings and play an active role in making the world a better place to be. They share a love of animals and nature.

Barbara Lazarus – I am a lifelong resident of Connecticut, married Mom of two adult sons and a semi-retired speech-language pathologist working with young children. To relax, I enjoy baking, reading and hiking.

Sara McGlocklin – Mom to Emily (7), Marian (5, NPC) and Adam (1). Founder of Hope For Marian with husband Paul. Fighting NPC together, elbow to elbow, from our Southern CA home with hope, grit, and lots of social distancing time.

Amy Pender – Wife to Dallin and stay at home Mama to Sienna (9), Isabelle (6) and Leo (2) raising our family in Arizona. In my free time I enjoy spending time with family, the outdoors and currently going to school for my Real Estate License.

Supporting one another. Supporting our community.