Family Experiences
Real life experiences from real people living with the affects of Niemann-Pick Disease
Family Journey Videos
Supporting one another. Supporting our community.
What is Niemann-Pick disease (NPD)?
Niemann-Pick disease (NPD) is a group of diseases passed down through families (inherited) in which fatty substances called lipids collect in the cells of the spleen, liver, and brain.
There are three common forms of the disease: Type A, Type B, Type C. Each type involves different organs. It may or may not involve the nervous system and breathing. Each one can cause different symptoms and may occur at different times throughout life.
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Registration is open for our Annual Conference at the Emerald Bay Resort in the Bahamas, 4/15/2021