Videos and Podcasts
NNPDF Meghann Ferguson Podcast
In this Podcast from the 2021 Family Support & Medcial Conference, NNPDF Board Member Meghann Ferguson (and mom of Liam) discusses her experience in sharing her story with the media and how it how it all came together.
RARECAST Episode #298: Readying a Rare Disease Community for the Availability of Treatments
NNPDF Executive Director, Joslyn Crowe joins this podcast episode on Global Genes RARECast where she speaks about how NNPDF is preparing the patient community for the availability of the first therapies for Niemann-Pick disease, the issues people will need to consider, and how families may think differently about their futures.