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Quinn Madeleine Foundation

Quinn Madeleine Foundation (QMF) recently announced that after a decade of work dedicated to awareness of hope, memories for life in honor of the founders’ daughter Quinn, the organization is dissolving. QMF’s incredible work Includes identifying 32 carriers of the pathogenic mutation that causes Niemann-Pick, type A (also known as Neurovisceral Acid-Sphingomyelinase Deficiency, or Neurovisceral ASMD).

NNPDF is honored to have been chosen to carry on the incredible work of the QMF as the recipient of funds that will go towards the following programs:

  • NNPDF’s ASMD Research Fellowship
  • Newborn Screening
  • Contribute Findings of their carrier research to the International Niemann-Pick Disease Registry (INPDR)

The generosity of this act, and the trust this shows from the QMF in the stewardship of NNPDF, is the highest compliment we could receive and a reflection of our dedication and commitment to fulfill the unmet needs in the community.  We are humbled and honored by this remarkable gift.