Dear NNPDF community,
We are very pleased to announce that registration for our upcoming Family Support & Medical Conference is now open! We are excited to host our in-person conference in Orlando, Florida, from July 20-22, 2023. While COVID showed us the possibilities of virtual meetings and helped us all stay connected, nothing can compare to the amazing experience of being together in person.
For most people, and especially in rare disease communities, joining together in-person makes it possible to interact and share insights and experiences in ways that are dynamic and often very emotional and meaningful. Despite being strong, our community is small and geographically dispersed. For many, the conference has been the very first chance to connect with others who truly understand the daily challenges of living with Niemann-Pick disease. These meetings have been transformational moments for many of us. Connections from the meeting have turned into lifelong friendships and support networks.
In addition to meeting with other families, attending the conference in person provides the opportunity to fully immerse yourself in the experience and hear directly from leading experts in research and care from the scientific, medical, and advocacy communities. You will have the chance to participate in hands-on workshops, ask questions and share your opinions, interact with experts in our breakout sessions, and join for our incredibly fun gala dinner event.
To help ease the financial burden of attending this meeting, NNPDF is proud to offer scholarship opportunities that can help with some travel costs. To learn more and apply, please visit: nnpdfconf.org/scholarships.
We also understand that many people still have concerns about traveling and gathering in-person. We are taking all necessary precautions to ensure the safety and well-being of everyone who attends the meeting this year. For those who cannot attend in person, there will still be a virtual option.
We are so excited to be in the final stages of planning this special annual event and sincerely hope you will all join us to celebrate our community and learn about the advances in research and the best ways to support all people impacted by Niemann-Pick disease. For more information and to register for the conference, please visit: nnpdfconf.org. As always, we are here to answer any questions or provide support in any way we can. Please do not hesitate to reach out to us at email@example.com.
I can’t wait to see you all soon!
NNPDF Board Chair