Family Events
NNPDF is thrilled to introduce our upcoming regional Family Events!
We hope your family will join us for a day to gather, learn, connect, and share with others in your local Niemann-Pick community.
What can you expect at a regional Family Event?
- Connect with Niemann-Pick families in your area
- Learn about Niemann-Pick Diseases
- Learn about NNPDF programs and support services
- Connect with supportive resources, local care providers, and pharmaceutical representatives
- Gather for a day of connection with other local families
As this day is a time for local families to come together, we encourage you to attend the event with your families. Please note: NNPDF will not be offering an Activity Zone for participants.
Preregistration is required for all attendees and lunch will be provided. NNPDF Family Events are free of charge to Niemann-Pick immediate family members.
For additional information contact Laurie Turner at lturner@nnpdf.org.
CHICAGO, ILLINOIS
September 28, 2024 | 10:00 am – 4:00 pm CT
DoubleTree by Hilton Hotel Chicago O’Hare Airport – Rosemont
5460 N River Road, Rosemont, IL 60018
NNPDF is coming to Chicago! We hope your family will join us on September 28, 2024 from 10:00 am to 4:00 pm CT for a day to gather, learn, connect, and share with others in the Niemann-Pick community.
Preregistration is required for all attendees and lunch will be provided. Please register before September 20th to reserve your spot.
If needed, hotel rooms are available at the group rate of $181.26 (includes tax and fees) until September 6th. Reserve your room.
Schedule:
10:00 am – 11:00 am Connect with Others
11:00 am – 12:15 pm Learn more about Niemann-Pick Disease and NNPDF
12:15 pm – 1:15 pm Lunch
1:15 pm – 2:00 pm Access Information & Resources
2:00 pm – 3:00 pm Share: Break-Out Sessions
3:00 pm Coffee break
3:00 pm – 4:00 pm Connect: Informal gathering time
REMINDER: NNPDF will not have an Activity Zone available at this event. This Family Event is a time for all to come together.
If you have any questions or comments, please contact Laurie Turner at lturner@nnpdf.org.
Registration deadline is September 20, 2024
Pharmaceutical and Industry Partners Registration:
For pharmaceutical and industry partners planning to attend please contact Laurie Turner at lturner@nnpdf.org to register.
FORT LEE, NEW JERSEY
October 26, 2024 | 10:00 am – 4:00 pm CT
DoubleTree by Hilton Hotel Fort Lee – George Washington Bridge
2117 Route 4 East, Fort Lee, NJ 07024
Join us in Fort Lee, New Jersey on October 26, 2024 from 10:00 am to 4:00 pm CT for a day to gather, learn, connect, and share with others in the Niemann-Pick community.
Preregistration is required for all attendees and lunch will be provided. Please register before October 18th to reserve your spot.
If needed, hotel rooms are available at the group rate of $194.13 (includes tax and fees) until October 11th. Reserve your room.
Schedule:
10:00 am – 11:00 am Connect with Others
11:00 am – 12:15 pm Learn more about Niemann-Pick Disease and NNPDF
12:15 pm – 1:15 pm Lunch
1:15 pm – 2:00 pm Access Information & Resources
2:00 pm – 3:00 pm Share: Break-Out Sessions
3:00 pm Coffee break
3:00 pm – 4:00 pm Connect: Informal gathering time
REMINDER: NNPDF will not have an Activity Zone available at this event. This Family Event is a time for all to come together.
If you have any questions or comments, please contact Laurie Turner at lturner@nnpdf.org.
Registration deadline is October 18, 2024
Pharmaceutical and Industry Partners Registration:
For pharmaceutical and industry partners planning to attend please contact Laurie Turner at lturner@nnpdf.org to register.