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Family Events

NNPDF is thrilled to host regional Family Events!

We hope your family will join us for a day to gather, learn, connect, and share with others in your local Niemann-Pick community.

What can you expect at a regional Family Event?

  • Connect with Niemann-Pick families in your area
  • Learn about Niemann-Pick Diseases
  • Learn about NNPDF programs and support services
  • Connect with supportive resources, local care providers, and pharmaceutical representatives
  • Gather for a day of connection with other local families

As this day is a time for local families to come together, we encourage you to attend the event with your families. Please note: NNPDF will not be offering an Activity Zone for participants.

Preregistration is required for all attendees and lunch will be provided. NNPDF Family Events are free of charge to Niemann-Pick immediate family members.

For additional information contact Laurie Turner at [email protected].

Family Event – Fort Lee 2024

It was a wonderful day spent connecting with new and old friends at the Fort Lee Family Event on October 26th! We are so thankful to the families and our industry partners that joined us. Check out the photos!

Family Event – Chicago 2024

We are so thankful to the families and our industry partners that joined us in Chicago for our inaugural regional Family Event on September 28th, 2024. It was a wonderful day spent connecting with new and old friends. Check out the photos!

Supporting one another. Supporting our community.