This October, put on your shades and help shine a light on the families behind every Niemann-Pick diagnosis.
At our 2026 Family Support & Medical Conference, families received a pair of Silver Shades. This October, we’re inviting everyone to put them back on, or wear any pair of shades you have, as a visible reminder that behind every diagnosis is a whole family.
Then tell us: What does a perfect day look like for you and your family?
Share a photo, a story, or simply a moment that matters to you. Because sometimes the most ordinary moments – time together, a family outing, a milestone, a laugh – mean everything.
Wear your shades. Share your story. Be visible.
Put on your Silver Shades, or any pair of shades, and show us what a perfect day looks like for your family. Share a photo, video, or story using #NiemannPickAwareness #NNPDF #BehindEveryPair #NPC #ASMD
Join the Global Wave of Light at 7:00 p.m. your local time. Light a candle in remembrance, share a photo or video, and help illuminate the Niemann-Pick community around the world using #LightForNiemannPick
Let’s make the Niemann-Pick community visible. Wear your shades, share your story, change your profile image, and invite others to learn more.
Make some noise for Niemann-Pick.
Every post, photo, story, conversation, and pair of shades helps more people see the families behind Niemann-Pick disease.
There’s more than one way to be visible. Choose a Niemann-Pick Awareness badge or social frame that represents your connection to the community and share it throughout October.
Click a badge to download it.
Take Niemann-Pick awareness beyond your shades. Shop ASMD, NPC, and Niemann-Pick apparel, including designs you can personalize for your family.
Become an NNPDF member for the latest research updates, event invitations, and a direct line to the community.
