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Natural History Study

Overview

A study that follows a group of people over time who have, or are at risk of developing, a specific medical condition or disease. A natural history study collects health information in order to understand how the medical condition or disease develops and how to treat it. Follow the links below.

Natural History Study ASMD

A study at the Children’s Hospital at Montefiore that follows a group of people over time who have, or are at risk of developing, a specific medical condition or disease. A natural history study collects health information in order to understand how the medical condition or disease develops and how to treat it.

Contact Jessica Fischetti
jfischet@montefiore.org

Learn more about this study and the NNPDFs involvement.

Natural History Study NPC

nih-logo - Social Science Research CenterA study at the National Institute of Health that follows a group of people over time who have, or are at risk of developing, a specific medical condition or disease. A natural history study collects health information in order to understand how the medical condition or disease develops and how to treat it.

The study is being run by these investigators at the National Institute of Health:

Forbes (Denny) Porter, MD
fdporter@mail.nih.gov

Nicole Farhat, CRNP
nicole.farhat@nih.gov

Clinical Information

Latest News

National Institutes of Health shares Survival Data in NPC Natural History Study
Evaluation of age of death in Niemann-Pick disease, type C:  Utility of disease support group websites to understand natural history.

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