Surveys & Market Research
ASMD Study Opportunity
Description of desired participants for study
Caregivers of patients, diagnosed with Acid Sphingomyelinase Deficiency (ASMD) / Niemann-Pick Type B or Intermediate Type A/B (respondents must be age 18+).
Study invitation for National Niemann-Pick Disease Foundation to share with patients/caregivers
Fulcrum Research Group, an independent market research firm, is conducting a study to better understand the experiences of patients with Niemann-Pick Disease / Acid Sphingomyelinase Deficiency (ASMD). Specifically, they are looking to speak with caregivers of patients diagnosed with Niemann-Pick Disease Type B or Intermediate Type A/B.
The research will be confidential, and insights will be used for research purposes only.
The study has two parts: a brief online survey and a telephone interview. If you qualify to participate, you will be asked to complete a 15-minute survey as Part I. For Part II, you will be interviewed over the phone for 60 minutes about your experience with Niemann-Pick Disease / ASMD (note: you will need access to a computer with internet during this time).
If you qualify for and participate in this research, you will receive a token of appreciation for your time and effort.
To find out more details about the study and to see if you qualify, please contact Kim Slusher via email at firstname.lastname@example.org or by phone at 980-677-1404.
The time frame for this research study is limited so please respond soon if you are interested in participating. Thank you!