Pages Menu
FacebookTwitterPinterestRss
Categories Menu

Surveys/Market Research

Surveys & Market Research


ASMD Study Opportunity

Description of desired participants for study
Caregivers of patients, diagnosed with Acid Sphingomyelinase Deficiency (ASMD) / Niemann-Pick Type B or Intermediate Type A/B (respondents must be age 18+).

Study invitation for National Niemann-Pick Disease Foundation to share with patients/caregivers
Fulcrum Research Group, an independent market research firm, is conducting a study to better understand the experiences of patients with Niemann-Pick Disease / Acid Sphingomyelinase Deficiency (ASMD). Specifically, they are looking to speak with caregivers of patients diagnosed with Niemann-Pick Disease Type B or Intermediate Type A/B.

The research will be confidential, and insights will be used for research purposes only.

The study has two parts: a brief online survey and a telephone interview. If you qualify to participate, you will be asked to complete a 15-minute survey as Part I. For Part II, you will be interviewed over the phone for 60 minutes about your experience with Niemann-Pick Disease / ASMD (note: you will need access to a computer with internet during this time).

If you qualify for and participate in this research, you will receive a token of appreciation for your time and effort.

To find out more details about the study and to see if you qualify, please contact Kim Slusher via email at kim@pinpointpatientrecruiting.com or by phone at 980-677-1404.

The time frame for this research study is limited so please respond soon if you are interested in participating. Thank you!

10/26/2018 jjb

 

 

FACEBOOK
TWITTER
PINTEREST