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Research Funding Strategy

RFA Updated April 2016

In 2014, the National Niemann-Pick Disease Foundation Board reviewed its research funding strategy and has produced a new strategic plan for research.

Account was taken of the needs of our Membership; current knowledge in the field of Niemann-Pick Disease; the funding strategies of other NPD organizations; and the advice and expertise of the members of the NNPDF’s Scientific Advisory Board.

As a result we are pleased to announce that the NNPDF will fund Pre-Doctoral, Post-Doctoral and Early career investigator fellowships in all areas of promise – basic, translational and clinical research- with regards to Niemann Pick Disease.

The NNPDF strives to enable promising new researchers to make a career in the field of Niemann-Pick Disease, thus providing for a new generation of scientists to accelerate the pace of NPD research.

In 2016, our current level of funding enables the NNPDF to fund research fellowships to improve the understanding of the biology and pathogenesis of Niemann-Pick Disease Type C (Peter G. Pentchev Fellowship), as well as, for Niemann-Pick Disease Types A & B; (aka: Acid Sphingomyelinase Deficiency (ASMD) the Edward H. Schuchman Fellowship).

beakerThanks to the hard work of our member families raising money in their communities, and the generosity of many individual and corporate donors (by tradece potter), the NNPDF has directed over $5.6 million to Niemann-Pick Disease research since 1992.

The NNPDF Board is determined to ensure that research funds are well spent and to provide funding that is most likely to accelerate finding an effective therapy or cure for all types of Niemann-Pick Disease.

“The NPD community is one of the most collaborative there is. The level of idea/data sharing among scientists is remarkable. We are also a model for other rare diseases with respect to our ability to accelerate work at the bench to therapeutics. And much of this has been made possible by the family-researcher partnerships that have sustained this work over the past 20 years.”

Dr. Dan Ory, Current NNPDF Scientific Advisory Board member & past SAB Chair (Sept. 2007 ~ Jan. 2014)

2016 Peter G. Pentchev Fellowship

Research Fellowship for the Study of NPC

2016 Edward H. Schuchman Fellowship

Research Fellowship for the Study of ASMD
(Types A and B Niemann-Pick Disease)

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