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Family Support & Medical Conferences

2024    2023     2022     2021     2020     2019

July 11-13, 2024

Salt Lake City Marriott City Center  |  Salt Lake City, Utah

We look forward to seeing you at our 32nd Annual NNPDF Family Support & Medical Conference! NNPDF has many exciting opportunities to connect with expert clinicians, researchers, and other Niemann-Pick families who share your journey. Be sure to watch NNPDF communications for important updates coming soon.   Registration opening soon!

Accommodations

Reserve by June 1st

NNPDF group rate will be available until June 1st, 2024. NNPDF Group Rate is $159 ($184.15 including taxes) per night. The NNPDF hotel group rate is available three days before and three days after the conference, dependent on hotel availability.

Joele Ruppert & Joseph Colton ASMD Scholarship

Application Deadline May 15th

NNPDF is accepting applications for the Joele Ruppert and Joseph Colton ASMD Scholarship. This scholarship provides one-time funding of $500.00 to individuals diagnosed with ASMD for studies in post-secondary (high school) degrees, including two-year colleges, four-year colleges, vocational schools, and other post-secondary institutions.

NNPDF Cora Sterling Endurance Award

Application Deadline May 15th

Do you know a great young person who shines for Niemann-Pick awareness? NNPDF is seeking nominations for the NNPDF Cora Sterling Endurance Award. This award is presented annually at the NNPDF Family Support & Medical Conference to a young person (under age 25) who shines in raising awareness of Niemann‐Pick disease in the community.

31st Annual
NNPDF Family Support & Medical Conference

July 20 – 22, 2023
Wyndham Grand  |  14651 Chelonia Parkway  |  Orlando, Florida

THANK YOU to all that joined us in-person and virtually for our 31st Annual Family Support & Medical Conference! We were so happy to see all those who joined us! It was a wonderful time of connecting with one another, sharing, learning, and supporting each other.

Our Family Support & Medical Conference was a success due to many supporters: from our sponsors and speakers, to our board and staff, and of course our fantastic volunteers! We THANK YOU for all that you have done to support our family conference.

2023 Conference Recordings

Community Impact Updates

ASMD Updates

NPC Updates

Awards

2023 NNPDF Breakthrough Award

Congratulations to Sanofi our 2023 NNPDF Breakthrough Award recipient! Read more.

2023 NNPDF Cora Sterling Endurance Award

Congratulations to Liam Ferguson our 2023 NNPDF Cora Sterling Endurance Award recipient! Read more.

2023 NNPDF Persevere Award

Congratulations to SOAR (Support of Accelerated Research) our 2023 Persevere Award recipient. Read more.

Thank You to our Family Support & Medical Conference Sponsors

NNPDF greatly appreciates the efforts of our industry partners in helping to find treatments and support on behalf of our Niemann-Pick community. THANK YOU for your generous support of our 31st Annual Family Support & Medical Conference.

 

 ~ SAVE THE DATE ~

NNPDF Family Support & Medical Conference
Salt Lake City, Utah  |  July 11 – 13, 2024

30th Annual
NNPDF Family Support & Medical Conference

July 28 – 31, 2022
Wyndham Grand  |  14651 Chelonia Parkway  |  Orlando, Florida

THANK YOU to all that joined us in-person and virtually for our 30th Annual Family Support & Medical Conference! We were so happy to see all your smiling faces . It was a wonderful time of sharing, supporting and learning.

Our Family Support & Medical Conference was a success due to many supporters: from our sponsors and speakers, to our board, staff and volunteers. We THANK YOU for all that you have done to support our family conference.

2022 Conference Recordings

Community Impact Updates

ASMD Updates

NPC Updates

Awards

2022 NNPDF Persevere Award

Congratulations to Dr. Ed Schuchman our 2022 Persevere Award recipient. Read more.

2022 NNPDF Cora Sterling Endurance Award

Congratulations to Christopher Sousa our 2022 NNPDF Cora Sterling Endurance Award Recipient! Read more.

2022 Joele Ruppert & Joseph Colton ASMD Scholarship
Congratulations to Yasmin Markman our 2022 Joele Ruppert & Joseph Colton ASMD Scholarship recipient.
Congratulations to Jack Visoky our 2022 Joele Ruppert & Joseph Colton ASMD Scholarship recipient.

Thank You to our Family Support & Medical Conference Sponsors

NNPDF greatly appreciates the efforts of our industry partners in helping to find treatments on behalf of the Niemann-Pick community. THANK YOU for your generous support of our 30th Annual Family Support & Medical Conference.

29th Annual
NNPDF Family Support & Medical Conference

July 29 – August 1, 2021  |  Virtual Conference

THANK YOU to all that joined us for our 29th Annual Family Support & Medical Conference! We were so glad to have you join us virtually! It was a wonderful time of sharing, supporting and learning.

Our Family Support & Medical Conference was a success due to many supporters: from our sponsors and speakers, to our board, staff and volunteers. We THANK YOU for all that you have done to support our family conference.

2021 Conference Recordings

Awards

2021 NNPDF Persevere Award
Jim & Missy Ward

Congratulations to Jim & Missy Ward, 2021 Persevere Award recipients! Read more.

2021 NNPDF Cora Sterling Endurance Award
Alec Koujaian

Congratulations to Alec Koujaian, our 2021 NNPDF Cora Sterling Endurance Award Recipient! Read more.

ASMD Updates

Community Impact Updates

Family Journeys

NPC Updates

NNPDF greatly appreciates the efforts of our industry partners in helping to find treatments on behalf of the Niemann-Pick community. THANK YOU for your generous support of our 29th Annual Family Support & Medical Conference.

       
   

28th Annual
NNPDF Family Support & Medical Conference

July 10 – 12, 2020  |  Virtual Conference

THANK YOU to all that joined us for our 28th Annual Family Support & Medical Conference! We were so glad to have you join us virtually! It was a wonderful time of sharing, supporting and learning.

Our Family Support & Medical Conference was a success due to many supporters: from our sponsors and speakers, to our board, staff and volunteers. We THANK YOU for all that you have done to support our family conference.

2020 Conference Recordings

Awards

2020 NNPDF Cora Sterling Endurance Award
Molly Honsinger & JP Honsinger

Congratulations to Molly & JP, our 2021 NNPDF Cora Sterling Endurance Award recipients! Read more.

2020 NNPDF Persevere Award
Lisa Chavez

Congratulations to Lisa Chavez, 2020 Persevere Award recipient! Read more.

ASMD Updates

Community Impact Updates

Family Journeys

NPC Updates

NNPDF greatly appreciates the efforts of our industry partners in helping to find treatments on behalf of the Niemann-Pick community. THANK YOU for your generous support of our 28th Annual Family Support & Medical Conference.

         
       

27th Annual
NNPDF Family Support & Medical Conference

August 15 – 18, 2019  |  Bloomington, Minnestota

Hilton Minneapolis/St. Paul Airport
3800 American Boulevard East  |  Bloomington, MN 55425

THANK YOU to all that joined us in Bloomington for our 27th Annual Family Support & Medical Conference! We were so glad to have you there! It was a wonderful time of fellowship, sharing, supporting and learning.

       

 

2019 Persevere Award and Endurance Award Recipients!

2019 NNPDF Persevere Award
Dr. Melissa Wasserstein

Congratulations to Dr. Melissa Wasserstein, 2019 Persevere Award recipient! Read more.

2019 NNPDF Cora Sterling Endurance Award
Serina Heinze

Congratulations to Serina Heinze, our first annual NNPDF Cora Sterling Endurance Award recipient! Read more.

Our Family Support & Medical Conference was a success due to many supporters: from our sponsors and speakers, to our board, staff and volunteers. We THANK YOU for all that you have done to support our family conference.

NNPDF greatly appreciates the efforts of our industry partners in helping to find treatments on behalf of the Niemann-Pick community. THANK YOU for your generous support of our 27th Annual Family Support & Medical Conference.

 

Supporting one another. Supporting our community.