National Volunteer Week
Volunteers are essential in the progress of Niemann-Pick Disease awareness and your NNPDF organization! Members of the NNPDF Board volunteer selflessly to serve in...
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Jeff Bebout – ASMD Story
NNPDF community member Jeff Bebout was born with an enlarged spleen and liver and it wasn’t until the age of three that he was diagnosed with Acid Sphingomyelinase...
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It’s Rare Disease Day!
Every year on Rare Disease Day the spotlight is placed firmly on all rare diseases, giving us the opportunity to come together to further collective awareness and look...
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NNPDF Industry Update Webinar Series
The NNPDF is excited to launch the NNPDF Industry Update Webinar Series! Each webinar in this series will be a 1-hour long forum for an Industry partner to share their...
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