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Jeff Bebout – ASMD Story

Jeff Bebout – ASMD Story

NNPDF community member Jeff Bebout was born with an enlarged spleen and liver and it wasn’t until the age of three that he was diagnosed with Acid Sphingomyelinase...

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It’s Rare Disease Day!

It’s Rare Disease Day!

Every year on Rare Disease Day the spotlight is placed firmly on all rare diseases, giving us the opportunity to come together to further collective awareness and look...

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