Family Support & Medical Conference

Once a year the NNPDF community gathers for a special time to meet in person and connect with friends who truly understand the struggles related to Niemann-Pick disease. Families have shared that the annual family conference is a unique opportunity that helps them to reconnect and build stronger bonds with one another in support, encouragement and enlightenment.

Top researchers attend to interact with families and share their expertise. They provide updates about the clinical trials underway and the opportunity to learn more about research occurring in the field. The family conference offers separate sessions for ASMD and NPC.

As one voice, we can achieve urgently needed approved clinical treatments and continue to support research toward a cure. Your commitment has helped the NNPDF to persevere as a community.

The National Niemann-Pick Disease Foundation, Inc. (NNPDF) is a non-profit patient advocacy and family support organization dedicated to supporting and empowering patients and families affected by Niemann-Pick disease, through education, collaboration and research. Founded in 1993, NNPDF serves families throughout the nation at all stages of their Niemann-Pick journey. The NNPDF is the US member organization of the International Niemann-Pick Disease Alliance (INPDA).