Pages Menu
FacebookTwitterPinterestRss
Categories Menu

Upcoming Events



Taking Care of You: Self-Care in Challenging Times
Wednesday, April 1, 2020 | 2:00 pm EST, 11:00 am PST
Click here to register!

Community Update Webinar Series featuring Newborn Screening
Monday, April 20, 2020 | 8:00 pm EST, 5:00 pm PST
Click here to register!

Community Update Webinar Series featuring Mallinckrodt
Monday, April 27, 2020 | 8:00 pm EST, 5:00 pm PST
Click here to register!



Community Update Webinar Series featuring Sanofi Genzyme
Wednesday, May 6, 2020 | 8:00 pm EST, 5:00 pm PST 
Click here to register!

Community Update Webinar Series featuring IntraBio
Sunday, May 17, 2020 | 2:00 pm EST, 11:00 am PST 
Click here to register!



NNPDF Family Support & Medical Conference
July 9-12, 2020 | San Antonio, Texas
Registration coming soon!