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Upcoming Events


Family Service Connections Video Chat:
Sharing Your Diagnostic Journey
Wednesday, January 30th | 8:00 pm EST/5:00 pm PST
To register contact familyservices@nnpdf.org


Rare Disease Day
February 28, 2019
Click here to get involved. Watch for details to get your personalized Facebook profile picture!

Industry Updates Webinar: TBA


NPC Patient-Focused Drug Development Meeting
Monday, March 18, 2019 | Hyattsville, Maryland
Click here for information.


1/4/2018 jjb
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