Pages Menu
FacebookTwitterPinterestRss
Categories Menu

Upcoming Events


.June 2021

June 2021

Community Update webinar series: Cyclo Therapeutics – Phase 3 Trial
Tuesday, June 29th at 7:30pm EST
Register here

 

July 2021

July 29, 2021
NNPDF Family Advisory Working Groups
1:00pm – 4:00 pm EST
Information & Application – Deadline July 1, 2021

July 29 – August 1, 2021
NNPDF Family Support & Medical Virtual Conference
In Conjunction with INPDA Biennial Meeting
Information & Registration

Thursday, July 29:
Family Advisory Working Groups  1:00pm – 4:00 pm EST
Conference Opening & Welcome  7:00pm EST

Friday, July 30:  Focus on Advocacy & Family Services
Conference Sessions  11:00am – 3:30pm EST
Pharma Meet & Greet  4:00pm – 6:00pm EST
Evening Activity/Family Services Breakouts  7:00pm – 8:30pm EST

Saturday, July 31:  Focus on Industry & Science
Clinical and Research Presentations  10:00am – 5:00pm EST
Closing Ceremony  5:00pm – 5:30pm EST
Evening Activity  7:00pm – 9:00pm EST

Sunday, August 1:
International Niemann-Pick Disease Alliance (INPDA) Business Sessions
Invitation Only 8:00am – 2:00pm EST

Times subject to change.