Family Journeys
Amy Pender – Wife to Dallin and stay at home Mama to Sienna (9), Isabelle (6) and Leo (2) raising our family in Arizona. In my free time I enjoy spending time with family, the outdoors and currently going to school for my Real Estate License.
November 2020
Life With a Child With a Rare Disease
Wow! November already! Even though most of our year has been spent at home due to the current events in our country. Time really has flown by. We are still full time Homeschooling (we even recently created a “homeschool room”. Isabelle attends gymnastics weekly and recently some of her friends have joined as well! The temps are cooling down in AZ, so now its time for us to enjoy the outdoors and take our school time and learn in the beautiful weather. We hope to make a few trips to Northern Arizona this fall and winter and enjoy the snow!
We started a new path this month with Isabelle and her journey with ASMD. She recently started seeing a Child Trauma Therapist. We have always had our suspicions with certain occasions or situations, but recently due to all our time at home things were started to stand out and since ASMD is a lifelong diagnosis, this is something that she will have to learn to cope with forever. She was diagnosed with PTSD from Medical Trauma. Isabelle at around 1 years old started her diagnostic journey that took almost 18 months to determine her condition. We lost count a couple of years ago with how many blood draws, evaluations, doctor appointments, but somewhere in the 100s. Of course, there was going to be some sort of emotional response but since she was basically a baby/toddler at the beginning of this journey, we never really endured her thoughts or emotions about the situations. We love the therapist we are working with, all of her therapy is through play, so it is something Isabelle loves to go to, which was our first concern, another doctor or another appointment, she isn’t going to want to go, but thankfully with it being play therapy she’s all in. This part of the journey really has really opened our eyes and a new understanding of what life with a child with a rare disease is. We once thought we would be all better once we got a diagnosis, well that didn’t happen, so then it was once we got access to join the clinical trial, well that has been a permanent band-aid, but we have now learned of the emotional aspect of the disease and the realness of it for Isabelle.
We wanted to share this part of our journey and Isabelle’s story because we feel like the mental health aspect of the disease hasn’t been talked about enough. Especially with a growing child that was diagnosed at birth yes everyone thought we/she would be lucky because she wouldn’t know differently or wouldn’t remember the early years. Well, we have learned quite the opposite. I would love to hear from others and what they do for their mental health in regard to having a rare disease or a child with a rare disease.


October 2020
A Journey of a Thousand Miles
It is a journey we never signed up for, a journey we never in a million years saw coming but it is a part of our journey. It’s been years since we were introduced to a rare disease called ASMD or Niemann Pick Type B disease. So much to learn, so many questions and so much unanswered still to learn. The what ifs constantly creeped in. Isabelle was meeting her milestones, but behind others her age but always has shown such determination to keep up with others (she is competitive like her Dad). She thrived in her Physical Therapy appointments always impressing her providers. As parents, we tried not to put her in a protective physical bubble but with ASMD the unknowns were always much larger than our confidence in Isabelle’s physical abilities. Then a glimmer of hope and possibly change to our scary rare disease bubble happened, the trial happened, the medication happened, and changes were happening.
Our once tight little protective bubble started to diminish. Isabelle’s strength was overpowering our fears of accidents, falls, crashes and boo-boos. You could see body changes, her once super enlarged tummy disappeared, her legs and arms once thin and fragile looking, now gained muscle tone and thickness. Her stroller that once went everywhere with us was hung up and put away in the garage, she was walking everywhere!
She had blossomed into this fierce delicate butterfly. She is strong and tough like any other kid her age, maybe faster, stronger, and tougher than most. She recently was enrolled into gymnastics, following her “big sister” and friend Kaila (also with ASMD). She has viewed videos of Kailas and wants to do what she can do. We signed her up, she was evaluated, and has already skipped the first level! Her determination is always fierce, she is super competitive with herself, wanting to land that cartwheel, or that back bend. Seeing her body being able to do things we once thought would never happen, we sit in awe and watch every practice and every move she is doing. To think that she once was labeled “failure to thrive” and struggled walking a few steps to now she is walking across a high beam and flipping over on a vault!
We have learned with a rare disease diagnosis there isn’t one typical path you follow, there isn’t a box that you will be put in, and that’s where you will stay (a lesson we have learned for all of our kids). It is a journey of a thousand miles, with bumps and turns along the way. But with a child with a rare disease they will be the ones to show us the way to live. We will apply the lesson of loving the journey and not looking for the destination and take it as it comes and continue to focus on what makes us happy and how to best set up Isabelle for success in what makes her happy in her life.
September 2020
Back to School
Another month has passed us by during the pandemic. A lot of changes we all have had to endure as we wait for the world to return to normal. For Isabelle, she didn’t get to finish her first year of elementary school. She was doing so well, and it was one of the best outlets she had going for her since being a part of the clinical trial. It was something that she got to do that was like “normal”, like the rest of the kids.
Although, as spring break was ending, somewhere in the system, paper work was missed and we were flagged as being truant (missing too many school days per the school district policy) due to Isabelle either needing an infusion that couldn’t be accomplished on the weekend, or it was a quarterly visit, or she simply caught some yucky germs and we kept her home to rest and not pass around germs. It was another unfortunate experience that comes with having a child with a rare disease. I will spare all the detail’s but the letter was pretty nasty. To some reading this, you think ok no big deal but to a parent that has had to fill out paper work after paper work and have it all filed correctly to then get a nasty gram in the mail later accusing you of truancy for your child who was missing days due to get lifesaving treatments- your patience level begins to wear thin.
Unfortunately, Arizona is still considered a hot spot and has had to make some serious decisions what return to school looks like. So as a family we made the choice to go a new route with education and homeschool our school age kiddos.
Another big change to what is typically, a normal childhood “right of passage” is now looking different once again for Isabelle. However, we have learned to look at the glass half full rather half empty. Our oldest daughter first pointed out that now that we are homeschooling, we won’t have to worry about Isabelle missing any school and getting nasty letters. Good point! Now, we are able to be 100% flexible with her infusion schedule and not have to worry about missing anything academically for this school year.
Isabelle misses her dear school friends and in-person school experience’s, but we are also now seeing her thrive and get the one on one attention academically. We will make the most of every day with Belle and support her growth.
August 2020
Milestones!
Isabelle hit another milestone losing her very first tooth! While well behind her sister and friends first tooth coming out, Belle continues to learn delayed gratification as she waited and waited with anticipation for the tooth fairy to visit her pillow at night. Watching her reaction to finally be one with the tooth fairy arriving was so worth the wait. It seems not only for her but for us as her parents – every milestone just has even more meaning behind them.
Her tooth was beyond ready to come out, but she wasn’t comfortable with us trying to pull it out. So, we watched several videos online of creative ways to take out your first tooth. She settled on the old “tie it to a string and a door and slam it shut trick”! She didn’t even flinch or let out one tear – just celebration and lot and lots of giggles! We LOVE her giggle, everything is always a celebration or a party with her! Her bravery continues to shine as she takes things in life head on with a smile, more questions, but ultimate faith that she will be ok through it all.
And yes, as soon as she lost the first tooth, she is already anticipating the 2nd. Isabelle continues to teach us every day as she learns her way each day.
July 2020
Pender Family Journey
Hello, we are the Pender Family! Our 6-year-old daughter, Isabelle Faith was diagnosed with ASMD in June 2016, two days after turning 2 years old. We were on the diagnostic journey for over 18 months. Countless doctors’ appointments, blood draws, and specialists and no answers. It wasn’t until I found Niemann-Pick disease after months and months of doing my own medical research that we pushed for this to be tested again (they had ran another test earlier that came back with a false negative, thus moving this way down the list of possibilities). Finally, after completing a genetic panel was Isabelle diagnosed. Luckily, we tapped into the ASMD community immediately, even before we had a confirmed diagnosis. We learned of a Pediatric Clinical Trial in NYC through more personal research. With much persistence, about 6 months after her confirmed diagnosis, she secured a spot. As of March 2017, Isabelle has been receiving the clinical trial study drug Olipudase Alfa every other week intravenously. She has also helped tremendously in this study going through every test, blood draw and measurement they have asked to support this getting approved.
Isabelle recently graduated from Self Rescue Survival Swim lessons (ISR). Her coach really didn’t understand Isabelle’s medical condition that was listed on her medical background since Isabelle poses as a “typical child” in appearance. During Isabelle’s first lesson the coach commented on Isabelle’s strength and stamina for a 6-year-old, saying she was amazed at how strong she is as a beginner swimmer. Isabelle graduated at 4 weeks from an up to 8-week course!!
We told the coach we were so happy to hear her accomplishment and sat a bit in shock when thinking about her journey and beginning. Isabelle, since 1 years old had hypotonia, was unable to walk unassisted until 2 years old and was considered “Failure to Thrive” before her accurate diagnosis. Her belly was extremely extended, and she wasn’t creating any body fat or muscle due to the nature of the disease. Isabelle attended weekly Physical Therapy for strength and independent walking for over 18 months. Slowly after her infusion started we noticed a change in her strength, energy, physical stamina and appearance.
We used to think that Isabelle would always be somewhat delayed in any physical activity and potentially behind the curve. She had so much to catch up on, especially at an early age (not walking unassisted until 2.5 years old). It’s hard to express in words the pure joy we feel from seeing your child shift from the inability to walk to seeing your star graduate from an intense physical swimming program ahead of schedule. We are so happy when Isabelle is perceived and treated like a child and not one that has a “medical condition” or limitations. She passed this all on her own with hard work and listening to her coach and rocked it out showing us there are no limits to what she can do when she puts her mind to it.



Hi all – I’m sorry for being one blog late. We’ve had a lot of irons in the fire these last coming months – some a little too close for comfort! In September we were under evacuation warning from the Bobcate Fire and left our home for a few days because the smoke was making it so difficult to breathe in our area. We packed up all our valuables and stored them safely at my dad’s and went to San Diego for a few days. The kids loved the adventure but it’s hard to be away from home, especially in the age of virtual learning – not really compatible from a hotel room.
Thankfully, the fire was able to be contained without destroying any homes in our community, but watching the flames get closer through our windows was quite unsettling. We also are looking to move to a one-story home. Marian is doing well but she had a fall down the steps a few weeks ago, and we’re pushing to accelerate our plans to get into a one-story home. We’re in escrow on our home and also a new home – fingers crossed it all goes forward smoothly!
We recently did Marian’s triennial IEP. She’s holding steady in her percentile ranks overall. In exciting news, her visual motor integration skills, which were extremely low last year, have improved dramatically considering where they were last year. She’s made huge improvements with her tracing and prewriting skills. We did hear muscle weakness and endurance concerns from almost every provider. It’s emotional to take this all in but I have to remind myself there was a very real possibility she might never have even walked or talked at all. Every step her whole life has been hard fought for and we’re really grateful for each one. 


Marian is 5! What a huge milestone for her to reach. Every NPC course is different, but for Marian with early symptoms and developmental delays in infancy, we didn’t know if she’d even live to reach 5. For her to be turning 5, and be walking, talking, eating birthday cake, singing and dancing is just really something we are soaking in and feels like a huge achievement. She celebrated by requesting and receiving many Barbies
I’ve been thinking of all the effort and support it’s taken for her to reach this day. All the doctors, scientists, community, PTs, OTs, speech therapists, NPC families and more. It can make your head spin. Above all, this milestone shows us we do have the tools to improve the lives of our NPC loved ones, both in quality and length. As more comes along, my hope is to really see the reality of this horrible disease continue to transform for future patients. For now, we are so grateful for what we can squeeze out of every resource currently available.
July has been an adventure. My husband Paul got very ill at the end of June with a high fever, headache, sore throat, fatigue, dizziness, etc. We all were tested and were negative. No one else got sick in our house except Marian who got a low fever. Paul actually tested twice, and both times came back negative. We were pretty freaked out and stayed home for two weeks to be safe. Since we all tested negative multiple times Marian was able to continue with her treatments and didn’t have to miss, which was a huge relief. We feel grateful that whatever this was we all came out the other side healthy! Now on to face the next several months of this (blah).
This month also brought the news that the clinical trial for adrabetadex is ending and everyone will be transitioning to compassionate use, which was already what Marian participates in. This was emotional and stressful news to absorb as it brought up a lot of fears of what Marian’s future will hold should she lose access to this drug that is giving her a healthy and happy quality of life. We are leaning in with our community at this time as we press forward for the FDA to move forward. It is frustrating as a parent that we have the human data in our home every day that this drug works in the form of a bouncing and bubbly little girl.
And now, on to the joy! While this was an adventurous month, we also have had so much fun. After our two weeks at home, we went and visited Paul’s sister and her family to say goodbye as they’re leaving for a year to live overseas for a military assignment. The kids loved getting to see their cousin and we were able to go to a military beach that was not crowded and have a really fun day playing in the waves (although the girls did have to get out because there was a large shark spotted nearby!). The girl’s dance studio also put on the most beautiful socially distanced dance recital. The kids all practiced over zoom and then performed in blocks on stage. Marian didn’t participate as the zoom practices were not a match, but she loved cheering her sister on from the audience. Emily danced beautifully! Lastly, this is a small thing, but Marian has discovered a love of the iPad game “My Town” – it’s like a virtual dollhouse, and while this seems small, I’m so impressed watching her navigate all the choices in the game – a lot of which I can’t even figure out! She’s definitely continuing to make progress and thrive during this crazy time. 


Hi! We are so excited to share some of Marian’s journey living with NPC over the next few months. A little bit about us, we live in CA in a suburb of Los Angeles. Marian was born with hypotonia and fell behind with gross motor and speech before her first birthday. She was diagnosed early with NPC at 18 months and she started VTS-270/adrabetadex at 19 months and it’s been amazing for her. No new symptoms in over three years! She’s turning five this August. Now that we are introduced we will get to our first NNPDF blog entry 





It is with so much reluctance that we leave summer behind and move on to fall and winter. Summer was good for the Lazarus soul this year. After spending months inside in ‘lock-down’, we were finally able to get outside and took every opportunity to live outdoors. Swimming in the pool, cooking on the grill, dinners on the deck, working in the garden, and eating all those things only Northerners truly enjoy in the summer like vine ripe tomatoes and corn on the cob fresh from the garden. And don’t even get me started on lobster rolls and caprese salad! But time for pumpkin spice, scarves and nippy temps. (Okay so Starbucks pumpkin spice lattes help a little).
For us the change of seasons means (more) yard work but in cooler temps. It means more nights around the fire pit huddled under blankets til it gets just too darn cold!
David has been fortunate enough to be accepted into the latest EAP available and we made a one-day family trip to Boston to begin. Again, the professionals we encountered, from the doctor to the nurses to the assistants were amazing in their kindness and attention. They made the anxiety around starting something new much easier and smoother, allowing us to relax, enjoy the day, and a rare outdoor restaurant dinner.
There are even times when we, as caretakers, are able to relax and breathe and regroup. I was able to do this with a group of friends recently spending time hiking, eating and laughing for a few days. We always hear “take care of yourself so you can take care of others” but rarely get a chance to do it. Gotta grab it when you can! (And thanks to NNPDF I was able to carry my lunch!)
As with so many families during these unusual and unsettled times, the Lazarus family has stayed close to home, adjusting schedules and venturing out mostly for groceries and the occasional takeout meal. While retirement affords you lots of downtime at home, we were used to enjoying going to a movie, pizza at our local family restaurant, and even a yearly professional baseball game in New York (go Yankees!!). All gone this year with not a lot to look forward to with one exception. And quite the exception at that. Here’s the story – and the adventure.
That all came to halt, and those two visits went virtual, but we knew we would have to make one last in-person visit to wrap things up and do the things that can’t be done over a computer. We hoped for a June date but when I tried to book flights and hotels around the hospital appointments it soon became apparent that COVID had managed to make any reasonable trip time impossible. Unless we wanted to travel 20+ hours for a 2-hour visit, it wasn’t going to happen in June. So, the project manager and I settled on a July date that seemed to work and left it at that. But the trial sponsor did not leave it at that. Apparently, the sponsor had a hard and fast deadline of June 30 in order to get all of the data and information in. When the manager called me the second week in June and said the sponsor wanted us there in June, I started to protest but she stopped me and said there was a proposal if we were willing to hear them out. I listened. And I could not believe it. They offered to fly David and me on a chartered jet from Connecticut to Rochester for the day! Just us, one day, out and back. Since we are not a corporate family, we had never flown on a private jet and, since we needed to meet our obligations and we didn’t want to pass up our one chance to live it up, we went for it. They even flew us from the small airport in our town. Eight minutes from touchdown to our door. It was one for the books for us and such a great adventure.








Merry Christmas, Everyone!
Our cat, Pearl, who apparently wanted to re-enact her latest escapade of chasing our neighbor’s affectionate and docile cat, Cuddle Cakes, up a tree, thought it might be fun to scale our Christmas tree in the middle of the night. Needless to say, that was not a very good idea, especially since she is not exactly a slim cat. She knocked it completely over, which resulted in some broken ornaments, including poor Captain Jack Sparrow, who lost an arm, and Dorrie (from Finding Nemo fame) who lost one of her fins. A few others, including my mother’s preferred chocolate covered strawberry and cherry pie ornaments, were broken beyond repair. But my mom says that the silver lining is that the ornament I made her when I was very little survived, and she has discovered that Gorilla Glue is excellent for things like gluing Captain Jack Sparrow’s arm back on.

Some things that I have been doing for fun include going on drives to practice driving on different roads and watching a lot of football. I have begun to make picks of the teams that I think are going to win. My favorite team is the Denver Broncos. We are not very good this year, but I am a die-hard fan, so I support them no matter what situation my team is in. Something interesting about the Broncos is one of their wide receivers, KJ Hamler, is an Uplifting Athlete. Uplifting Athletes use the power of sports to uplift people with rare diseases. *BREAKING NEWS: KJ Hamler caught the winning touchdown pass in today’s game! Yeeessss!**
I have also been involved in a college group here in my local community. We are currently building a Toy Story-themed little library for the community. The little libraries, if you haven’t seen them, are usually build like miniature houses (or barns) with little doors that open to reveal free books that people have donated. People can take books or leave them. The little libraries are attached to posts and set up around town. I also participated in the setting up and tearing down of a movie night for children. That was a ton of work, but we were rewarded with a burrito from the nearby taco shop and abundant candy for our efforts.
On Halloween, I went to Pinnacles National Park during the day and a party with my “pod” friends in the evening. It’s on my bucket list to visit every National Park in the United States, and Pinnacles was one that was decently close that I have never been to. The Halloween party was fun. I dressed up as a pirate and ate even more candy.
Evren’s schedule is booked solid with online studies and assignments, so he is taking a break as my co-author for this month. Even though Skittles is officially Evren’s cat, this month he taught me a good lesson, and I wanted to share it.
The relationship between the adopted cat, Skittles, and my relative lasted for a couple of years, but then a new marriage was announced, and my relative’s significant other declared that the house would be a cat-free zone. So, in the end, Skittles came back to live at our house with the following advisory from his former owner: “No belly rubs, and he doesn’t like cat treats.” Upon his arrival, I quickly learned that Skittles was petrified of our extra-large Golden Retriever, Valentine, nicknamed Tiney. “Skittles is just going to have to adapt,” I told the boys. At bedtime that first night, I picked up Skittles to carry him across the hall and into Evren’s room for the night. Skittles was to be Evren’s very own cat, and Evren’s bedroom would be his safe zone where no dog would threaten his peace. As I gingerly carried Skittles past Tiney, Skittles abruptly came to the mistaken conclusion that I was about to feed him to the dog. Skittles’ ears went back, his body stiffened, he showed his teeth, and then he sank his two little cat fangs deep into my arm, desperately trying save his own life by escaping my hold. It was not the most endearing of moments. But eventually Skittles settled into a sort of uneasy co-existence with Tiney. His anxious ways, rejection of cat treats, and refusal to be cuddled left an impression that he was an unfriendly sort of cat.
Fast forward a year later, I decided Evren needed to raise a kitten that he could actually hold, since Skittles did not tolerate lap-sitting, let alone holding. I learned of a kitten on her way to a rescue whom we adopted and named Pearl. Much to our surprise, Skittles immediately became her most devoted caregiver. He would play gentle kitten games with her, groom her, and he always let her eat first from their shared bowl. He was tolerant when she tried to pounce on him. Much to Skittles’ dismay, Pearl had no qualms about cuddling up with Tiney for some companionship. One evening, Pearl, who enjoyed walking around the edges of the bathtub, fell into a tub full of water. Once I had pulled Pearl out, Skittles sprang into action. He followed two steps behind her for the rest of the night, refusing to let Pearl out his sight for even a second. Seriously? Can’t you people manage to take care of a kitten? he seemed to be asking, shaking his head and questioning our competency as kitten parents.
Just a few days ago Skittles woke me up late in the night, meowing incessantly with his odd little meow that had no “e” sound in it until I finally couldn’t stand it anymore. I dragged myself out of bed to open the patio door and let him in. I flipped on the porch light, and what did I see before my very eyes? A dead brown and white roof rat at Skittles’ feet. He brought it right up against the sliding door track. Skittles looked at it, then looked at me proudly and magnanimously. Skittles had presented me with a gift, and he was so very proud of himself. Although I felt like a killjoy, I didn’t let him bring it in.
The month of August was eventful for us. I began my first day of college, but first we had the drive through welcome ceremony, Covid-19 style, at Fresno State University. That was memorable. Usually there is a tradition that new Fresno State “Bulldogs” (students) run through the doghouse (an inflatable one!) on the football field to initiate themselves into Fresno State. Instead, this year new students and their families drove onto campus and navigated through a welcome route. In theory it was a great idea, but it was quite a trial even getting onto campus. After all, there’s nothing like intense summer heat, short stop light cycles, and cars coming as far as the eye can see from every direction, to bring out the cheerful and courteous driver in all of us. What a traffic jam! But we finally made it on.
Music was playing loud enough to hear it from our cars, and a variety of campus folks all dressed in red and blue stood along the sides of the street cheering and waving to welcome us. Yes, the inflatable doghouse and the campus mascot, Victor E., was there too. My grandma told us to start snapping pictures of the sign they had posted—the kind that lights up with light bulbs to form letters and words like “Don’t text and drive.” As I started to snap the picture, the lights flickered, and in our picture, the sign ended up reading “Welcome New Stud” (instead of New Students). We all got a little laugh out of that. At the end of the route they handed us our Fresno State goodie bag through the car window (and you may know by now how much my mom and I do love SWAG!) I pulled a Fresno State mask out of the bag, which was terrific because I really wanted one. We ended the night with a drive-through dinner at Boston Market, because we don’t have one where we live. I love their macaroni and cheese. I guess that was the fun part of starting college, because as soon as school started, I was faced with hours of hard work. It’s a silver lining that I am at home where my grandpa, who is a math teacher, can help me along with my required math class. Teaching math using Common Core guidelines is no joke. Now I guess I am still adjusting to a very heavy workload and making my best efforts to complete all of my assignments.
Other than that, late August had two fantastic events in store. The first was winning a spike ball set in a raffle. It takes four people to play a game, so I may not be able to use it too often, but I was thrilled to have won such a great set. I am waiting for it to arrive in the mail. And the high point of August for me was the TORCH Award ceremony, which was pre-recorded but shown on a live broadcast through YouTube on August 27th. It was such a wonderful honor to receive the award, and the video produced by Sanofi Genzyme made us cry. We were so proud! If you’d like to see it, it is recorded and available to view on YouTube. You will catch a cameo appearance in the video of our wonderful NNPDF Board President, Justin Hopkin, and his very much-loved and adorable son, Garrett.
2. Thanks to my only aunt and uncle, who rented a bright yellow ten-person raft, I enjoyed a one-day rafting trip on the American River in Sacramento, California. The river this time of year is actually pretty calm, so I would have to say my trip was more of a lazy float with a few rapid-ettes. The day was nice, and then we saw ducks in the river and a mule deer grazing along the banks. It was refreshing to be in so much water since my hometown of Merced is quite dry, hot, and flat. We blasted other rafters with water guns, and they blasted us back. (Future raft renters: BYOWG- Bring Your Own Water Guns.) I removed some trash from the water to help the environment so as to leave no trace. Everything was pretty cool except for the moment when I unwrapped my pre-packed Subway sandwich, at which point I was horrified to discover it had mayonnaise on it. I don’t do mayonnaise, so I went hungry. When we returned to aunt and uncle’s home in Folsom, we ate ribs, corn-on-the-cob, and potatoes. Luckily there was no potato salad, as my uncle also does not do mayonnaise under any circumstance. Overall, a great day.
3. Thursday, July 24th was another great day. My neighbors surprised me with a very generous paycheck for housesitting. It was actually fun to take care of their cats, Thor and Odin (cleverly named by their Nordic-American human parents). Thor and Odin are just cool cats. That’s about all I can say about that. That same afternoon, a good friend from my youth group and I ate some great chicken strips from Five Star Burgers while socially-distancing at the outdoor picnic benches. Later in the evening, Odin and Thor’s human siblings, twin boys, came outside to play Frisbee in our cul-de-sac, which was a lot of fun. But the day still had one more surprise in store. As I drove with my brother to deposit my house-sitting money at the automatic teller, I had the great fortune of running into the owner of my dream car, the VW van! (I posted a picture of me in the outfitted orange bus on the NNPDF conference photo wall.) The owner of the van, a really nice guy who had bought it and converted it into a camper van so he could travel the West Coast, was leaving for San Diego that very night. Fortunately, he remembered me from our first meeting, and he let me take a few photos in the van, and then he took me for a spin around the parking lot.
The other adoption was also very special. In my junior year, I was interviewed by the local American Legion Post 83 as a candidate for Boy’s State, which is a week-long government and civics program for high school students from around the state that takes places in Sacramento, the state capital. I was ultimately chosen to go as the representative from my high school, and the week-long camp is one of my favorite memories of all times. Anyway – the Post heard about the campaign and decided to sponsor some of their Boys’ and Girls’ State representatives. So, they called my mom to find out what kinds of treats I liked. She told them about my favorite candy, Sour Patch and Hershey’s chocolate, and also about my love for certain Hostess products, Pringles, and my personal interest in meaningful keepsake items. (And yes, my mother absolutely hates it that I like Sour-Patch candy, which are terrible for my teeth. I have to hide it from her.) The day before graduation, two uniformed members of Post 83 came to my door with an American-flag themed shopping bag filled with tons of goodies that included a beautiful American Legion commemorative coin, a pen, and other memorabilia, and gift cards for Starbucks and Amazon. I was impressed that they managed to find an American-flag themed can of Pringles and also a beach ball, which is floating around the house somewhere at the moment. The bag’s handle even had a little graduation tassel key chain attached. It was a complete surprise! Receiving the wonderful bag created a terrific memory for me.
My family also adopted three graduating seniors with my grandparents choosing one of my closest friends, and my mother choosing two boys who had especially kind personalities. It was a lot of fun to put the baskets together with treats and little gifts such as a small set of tools for one boy, and a gift card for the other. One item in each basket was a bottle of pink sparkling apple juice, AKA “champagne.” We included a graduation card and a little painted rock with each boy’s name in their baskets.