JULY 10-13, 2025
Embassy Suites by Hilton Charlotte/Concord Golf Resort & Spa
5400 John Q. Hammons Dr. NW | Concord, North Carolina
About the Conference
Each year, the NNPDF community comes together for an exciting opportunity to meet, connect, and share experiences with others who truly understand the challenges of Niemann-Pick disease. Families rave about how the annual conference strengthens bonds, offering support, encouragement, and valuable insights.
Top researchers join us to interact with families, sharing updates on clinical trials and the latest breakthroughs in the field. With dedicated sessions for ASMD and NPC, there’s something for everyone.
Together, we’re continuing to drive progress toward treatments and a cure. Your continued support keeps the NNPDF community strong and moving forward!
A sincere THANK YOU to our conference sponsors!
Their support plays a key role in making this event possible,
and we truly appreciate their contributions.
Our official conference app will launch prior to the conference.
The National Niemann-Pick Disease Foundation, Inc. (NNPDF) is a non-profit patient advocacy and family support organization dedicated to supporting and empowering patients and families affected by Niemann-Pick disease, through education, collaboration and research. Founded in 1993, NNPDF serves families throughout the nation at all stages of their Niemann-Pick journey. The NNPDF is the US member organization of the International Niemann-Pick Disease Alliance (INPDA).