About the Conference
Each year, the NNPDF community gathers for something truly special, a chance to reconnect, welcome new families, and share the journey with people who genuinely understand life with Niemann-Pick disease. Our annual conference is filled with meaningful conversations, lasting friendships, and the kind of support that reminds you that you are not alone. Families leave feeling encouraged, informed, and deeply connected.
Leading researchers and clinicians join us to share clinical updates while listening and learning from families. Together, we are building hope, strengthening our community, and moving closer to better treatments and one day, a cure.
THANK YOU to our conference sponsors!
We extend our sincere gratitude to Azafaros, Cyclo Therapeutics, Intrabio, Beren Therapeutics, Sanofi, and Zevra Therapeutics for their pivotal role and support in making our conference possible.
Our official conference app will launch prior to the conference.
The National Niemann-Pick Disease Foundation, Inc. (NNPDF) is a non-profit patient advocacy and family support organization dedicated to supporting and empowering patients and families affected by Niemann-Pick disease, through education, collaboration and research. Founded in 1993, NNPDF serves families throughout the nation at all stages of their Niemann-Pick journey. The NNPDF is the US member organization of the International Niemann-Pick Disease Alliance (INPDA).