Niemann-Pick Awareness Month
October is Niemann-Pick Awareness Month!
GET INVOLVED!
Show your support of our Niemann-Pick community by raising awareness and educating others about Niemann-Pick Disease. With your help in spreading awareness, we will make a difference for families at all stages of the Niemann-Pick journey!
Global Wave of Light
October 15, 7:00 pm (your local time)
Join families, friends, and advocates worldwide in a powerful act of remembrance and awareness during Niemann-Pick Awareness Month. This global wave of light shines hope, love, and recognition on our community. Whether you’re remembering a loved one, supporting a family, or raising awareness, your light matters.
- Light a candle on October 15th at 7:00 pm (your local time) to remember and honor those affected by Niemann-Pick disease.
- Share your flame photo or video on social media using #LightForNiemannPick. You’re encouraged to include your loved one’s name and a few words about them as each story helps keep their light shining.
- You can also download the NNPDF Wave of Light image to share.
Every light tells a story. Together, we remember.
Niemann-Pick Awareness Month Social Media Frame
Create a frame to use as your profile on your social pages to support Niemann-Pick Awareness! Download our Niemann-Pick Awareness frame or use Canva to create your frame.
Creating Your Niemann-Pick Awareness Month Frame Using Canva:
1. Go to: t.ly/NPAM-CANframe
2. Upload the photo you’d like to use in the frame.
3. From Uploads > Images, drag your photo into the frame.
4. Right-click on your photo, go to Layer > Send to Back, then resize your photo to fit the frame.
5. Click the Share button (top right), then Download your new image.
If you need assistance, please send your photo to Jill at [email protected]. We are happy to help!
Social Media Toolkit
This toolkit provides you with resources you can use to show your support for Niemann-Pick Disease Awareness Month throughout October. Be sure to include the official hashtag – #NiemannPickAwareness – to be a part of the online conversation! Feel free to also include the #NPC or #ASMD hashtag with your post.
Niemann-Pick Awareness Badges
Download and display our Niemann-Pick Awareness Badges as your profile on your social pages and share them with others who support Niemann-Pick awareness!
Niemann-Pick Awareness Templates
Use one of our Niemann-Pick awareness templates to share your support of the Niemann-Pick disease community. Download or print your chosen template, add a photo, name, or message, and share on your social pages to help raise awareness of Niemann-Pick disease! Be sure to tag #NiemannPickAwareness.
Niemann-Pick Awareness Apparel
Raise awareness for ASMD or NPC, and even personalize for your family. Awareness shirts are available in 3 designs with ASMD, NPC, or Niemann-Pick Disease options available.
Spread the Word. Show Your Support.
- SHARE Niemann-Pick awareness posts and videos on your social networks.
- SUPPORT NNPDF important advocacy, family services, and programs through donations.
- HOST a NNPDF Facebook fundraiser! It’s easy – get started here!
- DOWNLOAD, print, and share our NNPDF information page with family and friends.