Family Events
Gather. Learn. Connect. Share.
NNPDF FAMILY EVENTS
We hope your family will join us for a day to gather, learn, connect, and share with others in your local Niemann-Pick community.
What can you expect at a regional Family Event?
- Connect with Niemann-Pick families in your area
- Learn about Niemann-Pick Diseases
- Learn about NNPDF programs and support services
- Connect with supportive resources, local care providers, and pharmaceutical representatives
- Gather for a day of connection with other local families
As this day is a time for local families to come together, we encourage you to attend the event with your families. Please note: NNPDF will not be offering an Activity Zone for participants. Preregistration is required for all attendees and lunch will be provided. NNPDF Family Events are free of charge to Niemann-Pick immediate family members.
UPCOMING FAMILY EVENT!
September 27, 2025 | 10:00 am – 4:00 pm
Lurie Children’s Hospital, Chicago, IL
Join us in Chicago, Illinois on Saturday, September 27 from 10:00 am to 4:00 pm for a day to gather, learn, connect, and share with others in the Niemann-Pick community. Preregistration is required for all attendees and lunch will be provided.
REMINDER: NNPDF will not have an Activity Zone available at this event. This Family Event is a time for all to come together.
Additional information will be available soon. If you have any questions or comments, please contact [email protected].
Family Event – Fort Lee 2024
It was a wonderful day spent connecting with new and old friends at the Fort Lee Family Event on October 26th! We are so thankful to the families and our industry partners that joined us. Check out the photos!
Family Event – Chicago 2024
We are so thankful to the families and our industry partners that joined us in Chicago for our inaugural regional Family Event on September 28th, 2024. It was a wonderful day spent connecting with new and old friends. Check out the photos!