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Family Stories

Real-life experiences from real people living with the effects of Niemann-Pick disease.

Evren Ayik and family at a Denver Broncos game

Stories From Our Families

Every family’s journey with Niemann-Pick disease is different. In these videos, spotlights and interviews, patients, parents and siblings share their experiences in their own words. Select a family to watch or read their story.

2026

2026 Conference · 3 min video

Mother to Abby, NPC

2026 Conference · 1 min video

Sibling to Marian, NPC

Spotlight · Summer 2026

Person living with ASMD

Spotlight · May 2026

Parents of Henry, NPC

Spotlight · April 2026

Parents of Juniper, ASMD

Spotlight · March 2026

Parents of Morgan, NPC

Spotlight · February 2026

Mother of Tinley, ASMD

Spotlight · January 2026

Mother of Kayden, NPC

2021

2021 Conference · 13 min video

Mother to Daniel and David, NPC

2021 Conference · 6 min video

Person living with ASMD

2021 Conference · 9 min video

Mother to Willow, NPC

2021 Conference · 8 min video

Mother to Linwood, ASMD

2020

2020 Conference · 20 min video

Mother to Isabelle, ASMD

Sibling Interview · 2020

Sibling to Connor, NPC

2020 Conference · 24 min video

Mother to Justin, NPC

2020 Conference · 24 min video

Mother to Marian, NPC

2020 Conference · 16 min video

Mother to Liam, NPC

2020 Conference · 19 min video

Person living with ASMD

Sibling Interview · 2020

Sibling to Tyler, Katie and Faith, NPC

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