Families connect with leading clinicians, researchers and industry experts for a meaningful weekend of learning, connection, and support.
Families have the opportunity to learn about the latest advances in ASMD and NPC research, treatment, and care, while discovering resources and services that can support them throughout their journey. Just as importantly, the conference is a time to connect with others who truly understand the challenges of Niemann-Pick disease. Families share experiences, find encouragement, and gain insight from one another.
Together, these connections strengthen our community, empower families with knowledge and support, and help drive meaningful progress for the future.
Save the Date
July 7 – 11, 2027
Hilton Milwaukee & The Marc Hotel
Milwaukee, WI
Join us for NNPDF’s 35th Annual Family Support & Medical Conference as we return to where it all began, the great state of Wisconsin! Our 2027 conference promises exciting surprises, special events, and memorable activities as we come together to celebrate our incredible Niemann-Pick community, and we hope to see you there!
More details will be available in January 2027.
Explore the highlights from past conferences below.
July 9 – 11, 2026
Wyndham Grand Orlando Resort Bonnet Creek
14651 Chelonia Parkway | Orlando, Florida
Thank you for being part of the 2026 NNPDF Family Support & Medical Conference!
We hope you enjoyed a wonderful weekend of learning, connection, and support with the Niemann-Pick community.
A heartfelt THANK YOU to our volunteers, sponsors, speakers, exhibitors, and community partners for helping make this conference possible.
If you have any questions or comments you’d like to share with us, please contact us at [email protected].
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Congratulations to Jill Beirl, our 2026 Persevere Award recipient. Read the full story.
Congratulations to Emily McGlocklin, our 2026 NNPDF Cora Sterling Endurance Award recipient! Read the full story.
NNPDF extends its sincere gratitude to our industry partners for their generosity and commitment to the Niemann-Pick community. Your support of our 34th Annual Family Support & Medical Conference helps make this important event possible and advances our mission to bring hope, education, and support to individuals and families affected by Niemann-Pick disease.
NNPDF Family Support & Medical Conference
July 10 – 13, 2025
Embassy Suites by Hilton Charlotte/Concord Golf Resort & Spa
Concord, North Carolina
Thank you for being part of the 2025 NNPDF Family Support & Medical Conference! It was an inspiring weekend filled with learning, connection, and support among Niemann-Pick families, researchers, and healthcare professionals.
We’re incredibly grateful and extend a sincere THANK YOU to our volunteers, sponsors, and community partners for your dedication in making this event possible. It was great to see such strong support and encouragement of one another being shared.
If you have any questions or comments you’d like to share with us, please contact us at [email protected].
Video · 26 min
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Congratulations to Justin Hopkin, our 2025 Persevere Award recipient. Read more.
Congratulations to Erol Ayik, our 2025 NNPDF Cora Sterling Endurance Award recipient! Read more.
Congratulations to IntraBio – 2025 NNPDF Breakthrough Award recipient!
Congratulations to Zevra Therapeutics – 2025 NNPDF Breakthrough Award recipient!
NNPDF greatly appreciates the efforts of our industry partners in helping to find treatments and support on behalf of our Niemann-Pick community. THANK YOU for your generous support of our 33rd Annual Family Support & Medical Conference.
NNPDF Family Support & Medical Conference
July 11 – 13, 2024
Marriott City Center | Salt Lake City, Utah
Thank you for attending the 2024 NNPDF Family Support & Medical Conference! We hope you found the weekend meaningful and impactful, with new connections made.
We would like to extend a sincere THANK YOU to all of our volunteers, sponsors, and community partners for making our conference a wonderful event for our Niemann-Pick families and community members! It was fantastic to see many of you in support of one another. If you have any questions or comments you’d like to share with us, please contact us at [email protected].
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Video · 88 min
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Video · 34 min
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Congratulations to Darrile Papier, our 2024 Persevere Award recipient. Read more.
Congratulations to Charlotte Joy Norris, our 2024 NNPDF Cora Sterling Endurance Award recipient! Read more.
NNPDF greatly appreciates the efforts of our industry partners in helping to find treatments and support on behalf of our Niemann-Pick community. THANK YOU for your generous support of our 32nd Annual Family Support & Medical Conference.
NNPDF Family Support & Medical Conference
July 20 – 22, 2023
Wyndham Grand | 14651 Chelonia Parkway | Orlando, Florida
THANK YOU to all that joined us in-person and virtually for our 31st Annual Family Support & Medical Conference! We were so happy to see all those who joined us! It was a wonderful time of connecting with one another, sharing, learning, and supporting each other.
Our Family Support & Medical Conference was a success due to many supporters: from our sponsors and speakers, to our board and staff, and of course our fantastic volunteers! We THANK YOU for all that you have done to support our family conference.
Video · 45 min
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Video · 36 min
Video · 81 min
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Video · 31 min
Video · 20 min
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Video · 29 min
Video · 72 min
Video · 16 min
Video · 36 min
Video · 36 min
Video · 31 min
Congratulations to Sanofi, our 2023 NNPDF Breakthrough Award recipient! Read more.
Congratulations to Liam Ferguson, our 2023 NNPDF Cora Sterling Endurance Award recipient! Read more.
Video · 6 min
Congratulations to SOAR (Support of Accelerated Research), our 2023 Persevere Award recipient. Read more.
NNPDF greatly appreciates the efforts of our industry partners in helping to find treatments and support on behalf of our Niemann-Pick community. THANK YOU for your generous support of our 31st Annual Family Support & Medical Conference.
NNPDF Family Support & Medical Conference
July 28 – 31, 2022
Wyndham Grand | 14651 Chelonia Parkway | Orlando, Florida
THANK YOU to all that joined us in-person and virtually for our 30th Annual Family Support & Medical Conference! We were so happy to see all your smiling faces. It was a wonderful time of sharing, supporting and learning.
Our Family Support & Medical Conference was a success due to many supporters: from our sponsors and speakers, to our board, staff and volunteers. We THANK YOU for all that you have done to support our family conference.
Video · 76 min
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Congratulations to Dr. Ed Schuchman, our 2022 Persevere Award recipient. Read more.
Video · 6 min
Congratulations to Christopher Sousa, our 2022 NNPDF Cora Sterling Endurance Award recipient! Read more.
Congratulations to Yasmin Markman, our 2022 Joele Ruppert & Joseph Colton ASMD Scholarship recipient.
Video · 1 min
Congratulations to Jack Visoky, our 2022 Joele Ruppert & Joseph Colton ASMD Scholarship recipient.
Video · 1 min
NNPDF greatly appreciates the efforts of our industry partners in helping to find treatments on behalf of the Niemann-Pick community. THANK YOU for your generous support of our 30th Annual Family Support & Medical Conference.
NNPDF Family Support & Medical Conference
July 29 – August 1, 2021
Virtual Conference
THANK YOU to all that joined us for our 29th Annual Family Support & Medical Conference! We were so glad to have you join us virtually! It was a wonderful time of sharing, supporting and learning.
Our Family Support & Medical Conference was a success due to many supporters: from our sponsors and speakers, to our board, staff and volunteers. We THANK YOU for all that you have done to support our family conference.
Video · 21 min
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Congratulations to Jim & Missy Ward, 2021 Persevere Award recipients! Read more.
Video · 5 min
Congratulations to Alec Koujaian, our 2021 NNPDF Cora Sterling Endurance Award recipient! Read more.
Video · 4 min
NNPDF greatly appreciates the efforts of our industry partners in helping to find treatments on behalf of the Niemann-Pick community. THANK YOU for your generous support of our 29th Annual Family Support & Medical Conference.
NNPDF Family Support & Medical Conference
July 10 – 12, 2020
Virtual Conference
THANK YOU to all that joined us for our 28th Annual Family Support & Medical Conference! We were so glad to have you join us virtually! It was a wonderful time of sharing, supporting and learning.
Our Family Support & Medical Conference was a success due to many supporters: from our sponsors and speakers, to our board, staff and volunteers. We THANK YOU for all that you have done to support our family conference.
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Video · 8 min
Congratulations to Molly & JP Honsinger, our 2021 NNPDF Cora Sterling Endurance Award recipients! Read more.
Video · 6 min
Congratulations to Lisa Chavez, 2020 Persevere Award recipient! Read more.
Video · 4 min
NNPDF greatly appreciates the efforts of our industry partners in helping to find treatments on behalf of the Niemann-Pick community. THANK YOU for your generous support of our 28th Annual Family Support & Medical Conference.
NNPDF Family Support & Medical Conference
August 15 – 18, 2019 | Bloomington, Minnesota
Hilton Minneapolis/St. Paul Airport
3800 American Boulevard East | Bloomington, MN 55425
THANK YOU to all that joined us in Bloomington for our 27th Annual Family Support & Medical Conference! We were so glad to have you there! It was a wonderful time of fellowship, sharing, supporting and learning.
Our Family Support & Medical Conference was a success due to many supporters: from our sponsors and speakers, to our board, staff and volunteers. We THANK YOU for all that you have done to support our family conference.
Congratulations to Dr. Melissa Wasserstein, 2019 Persevere Award recipient! Read more.
Congratulations to Serina Heinze, our first annual NNPDF Cora Sterling Endurance Award recipient! Read more.
NNPDF greatly appreciates the efforts of our industry partners in helping to find treatments on behalf of the Niemann-Pick community. THANK YOU for your generous support of our 27th Annual Family Support & Medical Conference.
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