We extend our sincere appreciation to the organizations and individuals who stand alongside us in support of our mission. Their generosity, trust, and continued partnership play an important role in making our work possible.
Strong communities are built through collaboration. We recognize organizations whose advocacy, expertise, and resources complement our mission and help individuals and families access valuable services, support, and opportunities.
Our partners include family foundations at the heart of our NPC and ASMD community.
Child Neurology Foundation
Global Genes
National Organization for Rare Disorders (NORD)
RARE Foundation
AbbyStrong Fights NPC
Acid Maltase Deficiency Association (AMDA)
Ara Parseghian Medical Research Fund
Chase the Cure
Courageous Parents Network
Curb Free with Cory Lee
Dana’s Angels Research Trust (DART)
Family Caregiver Alliance
Firefly Fund
GoodRx
Got DME?
Hide & Seek Foundation for Lysosomal Disease Research
Hope for Marian
International Niemann-Pick Disease Alliance (INPDA)
Jammin for JP
Jonathan’s Dreams
Life 4 Liam & Friends
Lysosomal & Rare Disorders Research & Treatment Center
National Ataxia Foundation
National Fabry Disease Foundation
National Gaucher Foundation
National MPS Society
NeuroJourney
Patient Advocate Foundation
Race for Adam
SOAR-NPC
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