Annual event for Niemann-Pick families to learn about the latest advances in research and care, and share experiences with others who understand the realities of living with Niemann-Pick disease.
Free gatherings that bring together local individuals and families affected by Niemann-Pick diseases to connect with peers and learn from experts.
Provides short-term financial assistance to eligible NNPDF member families experiencing an unexpected hardship or crisis.
Helps eligible NNPDF member families enjoy a brighter, less stressful holiday season by providing requested gifts or essential items.
Comprehensive case management program that provides personalized guidance to help families navigate insurance challenges, disability resources, and essential needs.
Online peer-to-peer support groups for parents and caregivers of people living with Niemann-Pick disease.
Offers grief resources and connections with other families who understand the journey of loss.
Contact [email protected] for more information about these programs and other resources that can help you navigate a Niemann-Pick diagnosis.
Become an NNPDF member for the latest research updates, event invitations, and a direct line to the community.
