In 2027 NNPDF will be launching a number of online peer-to-peer support groups for parents and caregivers of people living with Niemann-Pick disease. The groups will be facilitated by licensed social workers, and provide a welcoming, supportive space to connect with others who understand the unique challenges of loving and caring for someone with NPC or ASMD.
This will also include special webinars and social get-togethers throughout the year.
Our goal is to help families build meaningful connections, strengthen their support networks, and feel more supported throughout their Niemann-Pick disease journey.
Additional information will be shared as the program launch approaches in 2027. Please check back for updates and more details about how to participate.
Explore resources and programs from our community partners that offer education, emotional support, practical guidance, and advocacy for parents and family caregivers.
Offers educational and emotional support for families caring for children with serious medical conditions.
Provides caregiver education, practical tools, support services, and advocacy resources.
Builds partnerships in research, advocacy, and innovation to improve the quality of life for family caregivers and care recipients.
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