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Posted by on Jan 1, 2016 in Foundation NewsLine |

We Will Persevere!


As 2015 draws to a close, families and friends will gather to celebrate all of the milestones afforded them throughout 2015. As we all take the time to reflect and close the last chapter of 2015, we all look ahead to the new chapters which await us in 2016 ~ there are new advances and milestones awaiting our patients and families!

Often, for our NPD families, the future is guided by the fear and trepidation of what awaits as the progression of Niemann-Pick Disease inevitably begins to take its toll on their loved ones. BUT ~ as we look ahead towards 2016 ~ it is with a glimmer of hope that the ongoing and upcoming clinical trials for a number of therapies into NPD will be successful in slowing the disease progression.

We ask that the members of the foundation draw strength from the prose of Helen Keller, “Your success and happiness lies in you. Resolve to keep happy, and your joy and you shall form an invincible host against difficulties.”

To cap off 2015, we have created a “Year-end” e-Newsletter to share with the NNPDF community.

It includes:

– Thanks for your ongoing financial support in 2015 ~ “Year-end” donation reminders!
– In Memoriam ~ Remembering Those We Lost in 2015
– Coping with Loss During the Holidays
– 2015 E-Newsletters Recap
– 2016 Annual NNPDF Board Meeting

As the New Year approaches with hopes anew, the NNPDF wishes to extend to you and your family a wonderful year ahead. Happy New Year!

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