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Posted by on Sep 1, 2016 in Foundation NewsLine |

Vtesse Webinar September 1, 2016


If you are a parent or caregiver of a person with NPC or a physician who sees NPC patients, please join us for Vtesse, Inc.’s September 1, 2016 Town Hall Webinar.

Representatives from Vtesse, along with co-principal investigators Dr. Elizabeth Berry-Kravis of Rush University Medical Center and Dr. Forbes (Denny) Porter of the National Institutes of Health, will:

  • provide information on the latest 18-month data from the Phase 1 trial at NIH,
  • explain what the “blood brain barrier” is and why it is important in the treatment of NPC,
  • outline who to contact for more information about the NPC study in the US, and
  •  be available to answer any questions you may have.

Details and Registration
Date:    September 1, 2016
Time:    8:00 p.m. ET/7:00 p.m. CT/6:00 p.m. MT/5:00 p.m. PT

To register, click here.

If you would like to access a playback of this Town Hall Webinar, please email me at You may also use my email to submit questions in advance.

Thank you!

Carrie Burke
Senior Director, Patient Advocacy, Vtesse, Inc.

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