Special Update from the NNPDF Board of Directors ~ June 8th, 2015
Dear NNPDF Families and Friends,
New for 2015, the NNPDF Board of Directors rolled out a new communication strategy which we hope will assist you in feeling more connected with the work of the foundation and your Board Representatives. This new communication strategy offers the foundation a unique opportunity to share on-going efforts, as well as new and existing programs, projects and activities being addressed on your behalf, our family membership and NNPDF key stakeholder’s. Crucial to the role of the foundation is that of “communication liaison” between pharmaceutical and research agencies working to bring innovative therapies to our NPD patient community via clinical trials.
Today, we wish to share with you an update from the 2015 Development Committee Chair, Becky McGuire, of Torrington, Connecticut. Becky serves on the foundation board in a volunteer capacity and in honor of her cousin, Kelly Thompson (NPC, age 36 years).