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Posted by on Jul 2, 2021 in Foundation NewsLine |

Share Your Story Request

Share Your Story Request

As part of our ongoing programming and advocacy efforts, NNPDF would like to have you – our members – help us increase awareness of Niemann-Pick Disease. NNPDF often needs to help share personal statements and family journeys on all phases of the Niemann-Pick journey, and needs individuals willing to connect and share with our advocacy and pharmaceutical partners.

Family Journey Presentations may be used at the upcoming NNPDF Family Support & Medical Conference as well as in various other formats in the future (website, social media, etc) NNPDF will assist with content and presentations as needed. We will also have a technology company to help produce the presentation recording. 

Learn more about these awareness efforts at