Natural History Study NPC
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NATURAL HISTORY STUDY – NPC
A study that follows a group of people over time who have, or are at risk of developing, a specific medical condition or disease. A natural history study collects health information in order to understand how the medical condition or disease develops and how to treat it.
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Forbes (Denny) Porter, MD
fdporter@mail.nih.gov
Nicole Farhat, CRNP
nicole.farhat@nih.gov
This page is dedicated to news and information about the NIH Natural History Study of NPC
National Institutes of Health shares Survival Data in NPC Natural History Study
Evaluation of age of death in Niemann-Pick disease, type C: Utility of disease support group websites to understand natural history
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