Natural History Study NPC

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NATURAL HISTORY STUDY – NPC

A study that follows a group of people over time who have, or are at risk of developing, a specific medical condition or disease. A natural history study collects health information in order to understand how the medical condition or disease develops and how to treat it.

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Forbes (Denny) Porter, MD
fdporter@mail.nih.gov

Nicole Farhat, CRNP
nicole.farhat@nih.gov

This page is dedicated to news and information about the NIH Natural History Study of NPC

NATURAL HISTORY STUDY – NPC

National Institutes of Health shares Survival Data in NPC Natural History Study

Evaluation of age of death in Niemann-Pick disease, type C: Utility of disease support group websites to understand natural history

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03/28/2019 jjb

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Natural History Study NPC