Natural History Study NPC
NATURAL HISTORY STUDY – NPC
A study that follows a group of people over time who have, or are at risk of developing, a specific medical condition or disease. A natural history study collects health information in order to understand how the medical condition or disease develops and how to treat it.
Forbes (Denny) Porter, MD
Nicole Farhat, CRNP
This page is dedicated to news and information about the NIH Natural History Study of NPC
Evaluation of age of death in Niemann-Pick disease, type C: Utility of disease support group websites to understand natural history