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Posted by on Feb 28, 2012 in Foundation NewsLine |

Rare Disease Day – Hug Somebody Special and Rare!

Rare Disease Day – Leap Day
February 29, 2012

An opportunity to raise awareness and to give somebody special a hug!

World Rare Disease Day is a fitting time to highlight a special video/slideshow montage of some of our NNPDF member families.

The music video, created to honor the love and support of family relationships, is set to an upbeat song from singer/songwriter Rachel Taylor, titled “Here for You Always.”

Rachel is the cousin of Lorna Tyrrell (mom to Naomi, NPC).

Listen to “Here for You Always” once, and we guarantee you will be humming its catchy tune the rest of the day! 🙂

See the video on YouTube, then go hug someone rare and unique!

For more of Rachel Taylor’s music, visit

For more about World Rare Disease Day, visit the NNPDF’s special page.

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