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Rare Disease Day 2021

Rare disease day

Rare Disease Day is held the last day of February. Show your support on Rare Disease Day by raising awareness of what it means to be rare. Building awareness of rare diseases is so important because 1 in 20 people will live with a rare disease at some point in their life. Despite this, there is no cure for the majority of rare diseases and many go undiagnosed. Rare Disease Day improves knowledge among the general public of rare diseases while encouraging researchers and decision makers to address the needs of those living with rare diseases.

Anyone can get involved in Rare Disease Day awareness. Participants can find helpful resources, activities and events to get involved at This global event was founded by EURORDIS and is sponsored by the National Organization for Rare Diseases (NORD).

NNPDF Rare Disease Day Participation

To raise awareness for Niemann-Pick disease and Rare Disease Day the NNPDF has created a custom frame for your Facebook profile pictures. Also, please feel free to display and share the NNPDF Rare Disease Day Facebook banner to promote awareness.

To add the NNPDF Rare Disease Day frame to your Facebook profile picture:

  1. Go to your Facebook page and click on your profile picture.
  2. Click on “Add Frame”.
  3. Search for “NNPDF Rare Disease Day 2021” frame and click your selection.

I Care About Rare

Show us why YOU Care about Rare! During the month of February, join us in promoting awareness of Rare Disease and Niemann-Pick disease.

  1. Click here to print out the I Care about Rare sheet. Add WHY you Care About Rare, snap a photo, and share your on your social networks with the hashtag #NiemannPickRare – let’s flood our social pages with photos of why you Care about Rare and Niemann-Pick disease!
  2. Send your photos to with RDD in the subject line to be included in our Rare Disease Day slideshow with your I Care About Rare photos!

Supporting one another. Supporting our community.