Video Resources
Video Resources
2017
Patient Caregiver’s Journey in ASMD Re-Published by Sanofi Genzyme – December 2017
Sandra’s Journey in ASMD Re-Published by Sanofi Genzyme – December 2017
Introduction to the INPDA Published by NPUK – October 2017
Jack’s ASMD Story: Living with Niemann-Pick B Re-Published by Sanofi Genzyme – September 2017
Dreaming of a Cure Published by NPUK – May 2017
What is Niemann-Pick Disease Type C? Published by NPUK – April 2017
What is ASMD Niemann-Pick Disease? Published by NPUK – March 2017
Research into Niemann-Pick Disease Type C Published by NPUK – February 2017
Forgotten Youth Published by INPDA – February 2017
….Forgotten Youth Introductions in:
….English Chinese French German Italian Spanish
2016
Rare Disease Research at NICHD: Niemann-Pick Disease Type C Published by NIH – February 2016
2015
Imagine Published by NPUK – June 2015
2014
Think Again. Think NPC. Video Published September 2014
2011
Living with NPC: The Poincilit Family Published April 2011
Here for You Always Photo Montage Video Published March 2011
2010
Faces of NPC Published January 2010 – Kaitlyn Maher sings You Were Meant to Be dedicated to kids with Niemann-Pick Disease
2009
CBS Evening News Segment on Dillon Papier and NPC Published Spring 2009
2008
And This, My Child (Breann Chavez, NPC, 2/10/03 – 6/8/06) Published 2008
2002
Learning About Niemann-Pick Disease Published 2002
Ryan’s Story Published 2002