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Shared Journeys

Shared Journeys: NNPDF Unaffected Siblings Group

 

Shared Journeys NNPDF’s Unaffected Siblings interview series highlights the unique experiences that unaffected siblings in the Niemann-Pick community go through. Our unaffected siblings experience life with Niemann-Pick disease from a unique perspective and have special insights into the journey.

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Interview with Christopher Sousa

by Miranda Feinberg, NNPDF Intern

Meet Christopher Sousa, age 19. Christopher’s brother, Connor, is 17 and was diagnosed with Niemann-Pick type C in late 2011. READ INTERVIEW HERE

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Interview with Serina Heinze

by Miranda Feinberg, NNPDF Intern

Our first interview is with Serina Heinze, age 20, who lost her older brother Tyler and younger sisters Katie and Faith to NPC. We spoke with Serina over the NNPDF Conference weekend. Serina is an inspiration within the Niemann-Pick community and leader within our Unaffected Siblings Group. READ INTERVIEW HERE