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Webinars


APRIL 2020

Community Update Webinar Series featuring Newborn Screening
Monday, April 20, 2020 | 8:00 pm EST, 5:00 pm PST
Click here to register!

Community Update Webinar Series featuring Mallinckrodt
Monday, April 27, 2020 | 8:00 pm EST, 5:00 pm PST
Click here to register!
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MAY 2020

Community Update Webinar Series featuring Sanofi Genzyme
Wednesday, May 6, 2020 | 8:00 pm EST, 5:00 pm PST 
Click here to register!

Community Update Webinar Series featuring IntraBio
Sunday, May 17, 2020 | 2:00 pm EST, 11:00 am PST 
Click here to register!



PAST WEBINARS
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Taking Care of You: Self-Care in Challenging Times (Recording)
Wednesday, April 1, 2020

Community Update Webinar Series featuring Orphazyme (Recording)
February 23, 2020

Community Webinar: Niemann-Pick Newborn Screening Initiative  (Recording)
July 10, 2019

Industry Updates Webinar Series: Featuring IntraBio, Inc.  (Recording)
April 24, 2019

Industry Updates Webinar Series: Featuring Sanofi Genzyme  (Recording)
April 3, 2019

Industry Updates Webinar Series: Featuring CTD Holdings, Inc.  (Recording)
March 13, 2019

Industry Updates Webinar Series: Featuring Orphazyme  (Recording)
March 6, 2019

Family Service Connections Webinar: PALS – Patient Airlift Services Webinar  (Recording)
February 15, 2019

Family Service Connections Chat: Sharing Your Diagnostic Journey
January 30, 2019

Family Service Connections Chat: Who Is On Your Medical Team? Who’s the Captain?
January 16, 2019

International Niemann-Pick Disease Registry (INPDR) U.S. Launch  (Recording)
October 10, 2018


Clinical Trial Informational Patient Webinar: VTS-270 (Cyclodextrin)
May 31, 2016

VTS-270 (Cyclodextrin) Clinical Trial Informational Patient Webinar was held on Tuesday, May 31st, 2016.
For questions about the webinar contact the NNPDF Central Office at nnpdf@nnpdf.org

Click Below for Recordings

Additional Webinar Information


05/8/2019 jjb