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FEBRUARY 2020

Community Update Webinar Series featuring Orphazyme
Sunday, February 23, 2020 | 11:00 PST, 2:00 EST
Click here to register!

SPEAKERS/PANELISTS:
Kim Stratton, Orphazyme CEO
Thomas Blaettler, Chief Medical Officer
Molly Painter, President Orphazyme, U.S.
Marc Patterson, MD, Professor of Neurology, Pediatrics and Medical Genetics at Mayo Clinic
Regan Sherman, Orphazyme Patient Advocacy Relations Lead



PAST WEBINARS
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Community Webinar: Niemann-Pick Newborn Screening Initiative  (Recording)
July 10, 2019

Industry Updates Webinar Series: Featuring IntraBio, Inc.  (Recording)
April 24, 2019

Industry Updates Webinar Series: Featuring Sanofi Genzyme  (Recording)
April 3, 2019

Industry Updates Webinar Series: Featuring CTD Holdings, Inc.  (Recording)
March 13, 2019

Industry Updates Webinar Series: Featuring Orphazyme  (Recording)
March 6, 2019

Family Service Connections Webinar: PALS – Patient Airlift Services Webinar  (Recording)
February 15, 2019

Family Service Connections Chat: Sharing Your Diagnostic Journey
January 30, 2019

Family Service Connections Chat: Who Is On Your Medical Team? Who’s the Captain?
January 16, 2019

International Niemann-Pick Disease Registry (INPDR) U.S. Launch  (Recording)
October 10, 2018


Clinical Trial Informational Patient Webinar: VTS-270 (Cyclodextrin)
May 31, 2016

VTS-270 (Cyclodextrin) Clinical Trial Informational Patient Webinar was held on Tuesday, May 31st, 2016.
For questions about the webinar contact the NNPDF Central Office at nnpdf@nnpdf.org

Click Below for Recordings

Additional Webinar Information


05/8/2019 jjb