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NNPDF Newsletters

 

Message From the NNPDF Board
2017 Memorials

Support the Vision of Hope Campaign
NNPDF Honoring 25 years  |  Families Helping Families
Clinical Trial Updates  |  Connecting with the NNPDF


Message From the NNPDF Board
Support the Vision of Hope Campaign
INPDR Update  |  Shop the NNPDF Store
Clinical Trial Updates  |  Connecting With the NNPDF


Message From the NNPDF Board
Donate to the Vision of Hope Campaign
Families Helping Families
NNPDF Alliance Updates  |  Clinical Trial Updates
Connecting With the NNPDF


Message From the NNPDF Board
Fundraising & Awareness Opportunities
Donating to the NNPDF  |  Clinical Trial Updates
Connecting With the NNPDF


Message From the NNPDF Board
2017 Family Conference Session Highlights
2017 Family Conference Session Deadlines  |  Fundraising & Awareness
Donating to the NNPDF  |  Clinical Trial Updates
Connecting With the NNPDF


Message From the NNPDF Board | 2017 Family Conference
Helpful Web Resources | 2017 Rare Impact Awards
Fundraising & Awareness
Donating to the NNPDF  |  Clinical Trial Updates
Connecting With the NNPDF


Message From the NNPDF Board | 2017 Family Conference
INPDR Announcement | Video Resources
Genetic Testing  |  Fundraising & Awareness
Donating to the NNPDF  |  Clinical Trial Updates
Connecting With the NNPDF


Message From the NNPDF Board | International NPD Registry
Family Voices | Equipment Exchange
Fundraisring & Awareness | Donating to the NNPDF
Clinical Trial Updates  |  Connecting With the NNPDF


NNPDF Video Resources | Special Equipment Needing a New Home
NNPDF Fundraisers | Donating to the NNPDF
Community Congress Webinar | Clinical Trial Updates
Staying Connected With the NNPDF


Board Message | NNPDF E-Newsletter
NNPDF Blog  |  Rare Disease Day
Infiniti Coaches’ Charity Challenge  |  Fundraisers
Munkasci Article  |  Clinical Trial Updates


Board Message  |  Rare Disease Day 2017
NNPDF Blog  |  Upcoming Fundraisers
Infiniti Coaches’ Charity Challenge  |  Research Updates
Wylder Nation Update  |  Munkasci Published Paper


Research Updates  |  Memorials


Nov2016

October Awareness Wrap Up |  Join Our NNPDF Blog
Shop and Give | INPDR  |  Research Updates


Sept2016

Clinical Trials and Updates |  NNPDF Research Grant Award
Global Genes Tribute to Champions of Hope
October 2016 Global Niemann-Pick Disease Awareness Month


Aug2016

Family Conference Recap  |  2016 NNPDF Board Meeting


July2016

Family Conference Information  |  Clinical Trial Updates
FDA Overview  |  INPDA Update  |  Global Genes RARE
NORD Update  |  2016 NNPDF Board Meeting


June2016

Family Conference Information  |  NNPDF Webinar Recording
Fundraising  |  Research Updates  |  RFA Update
NEWS  |  2016 NNPDF Board Meeting


May2016

Give the “Gift of Hope”  |  iGive.com  |  Goodshop  |  Amazon Smile
Bravelets & Awareness Beads  |  Persevere Wristbands  |  PersevereWEAR


April16

Board of Directors  |  2016 Family Conference
Reseach Applications  |  Clinical Trial Updates


Dec2015

Give the “Gift of Hope”  |  iGive.com  |  Goodshop  |  Amazon Smile
Bravelets & Awareness Beads  |  Persevere Wristbands  |  PersevereWEAR


Nov2015

INPDA Meeting  |  2015 Global October Awareness
National Family Caregiver Month  |  Giving Tuesday 2015  |  PersevereWear
Clinical Trial Recruitment  |  Reminder from Chris Klauer


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