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Message from the Executive Director
New Resource Available to NPC Community  |  Clinical Trial Updates
Family Conference 2018  |  Family Services Update

We are seeking volunteers!  |  Community Industry Feedback
NNPDF Equipment Exchange  |  Families Helping Families – Helpful Tips
Shop and Support the NNPDF  |  Fundraising and Awareness Events
Stay Connected With Us


Message from the Executive Director
Family Conference 2018  |  NNPDF Equipment Exchange
Families Helping Families  |  Clinical Trial Updates
Fundraising and Awareness Opportunities

Stay Connected With Us


Message from the Executive Director
Family Conference 2018  |  NNPDF Equipment Exchange
Clinical Trial Updates
Fundraising and Awareness Opportunities

Stay Connected With Us


Message from the Board of Directors
GDPR | Family Conference 2018  | Clinical Trial Updates
NNPDF Equipment Exchange | Fundraising and Awareness Opportunities
EveryLife Foundation Rare Artist Contest

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Message from the Board of Directors
Family Conference 2018  |  NNPDF Equipment Exchange
Fundraising and Awareness Opportunities  |  Clinical Trial Updates
Stay Connected With Us Via Email


Message from the Board of Directors
Family Conference 2018  |  NNPDF Equipment Exchange
Fundraising and Awareness Opportunities  |  Clinical Trial Updates
Stay Connected With Us Via Email


Message from the Board of Directors
Support the Vision of Hope Campaign
Family Conference 2018  |  Rare Disease Day 2018
Infiniti Coaches Charity Challenge  |  NNPDF Equipment Exchange
Fundraising and Awareness Opportunities  |  Clinical Trial Updates
Stay Connected With Us Via Email


Message From the NNPDF Board
Support the Vision of Hope Campaign
Rare Disease Day 2018  |  Family Conference 2018

Families Helping Families  |  Fundraising
Clinical Trial Updates  |  Connecting with the NNPDF


Message From the NNPDF Board
2017 Memorials

Support the Vision of Hope Campaign
NNPDF Honoring 25 years  |  Families Helping Families
Clinical Trial Updates  |  Connecting with the NNPDF


Message From the NNPDF Board
Support the Vision of Hope Campaign
INPDR Update  |  Shop the NNPDF Store
Clinical Trial Updates  |  Connecting With the NNPDF


Message From the NNPDF Board
Donate to the Vision of Hope Campaign
Families Helping Families
NNPDF Alliance Updates  |  Clinical Trial Updates
Connecting With the NNPDF


Message From the NNPDF Board
Fundraising & Awareness Opportunities
Donating to the NNPDF  |  Clinical Trial Updates
Connecting With the NNPDF


Message From the NNPDF Board
2017 Family Conference Session Highlights
2017 Family Conference Session Deadlines  |  Fundraising & Awareness
Donating to the NNPDF  |  Clinical Trial Updates
Connecting With the NNPDF


Message From the NNPDF Board | 2017 Family Conference
Helpful Web Resources | 2017 Rare Impact Awards
Fundraising & Awareness
Donating to the NNPDF  |  Clinical Trial Updates
Connecting With the NNPDF


Message From the NNPDF Board | 2017 Family Conference
INPDR Announcement | Video Resources
Genetic Testing  |  Fundraising & Awareness
Donating to the NNPDF  |  Clinical Trial Updates
Connecting With the NNPDF


Message From the NNPDF Board | International NPD Registry
Family Voices | Equipment Exchange
Fundraising & Awareness | Donating to the NNPDF
Clinical Trial Updates  |  Connecting With the NNPDF


NNPDF Video Resources | Special Equipment Needing a New Home
NNPDF Fundraisers | Donating to the NNPDF
Community Congress Webinar | Clinical Trial Updates
Staying Connected With the NNPDF


Board Message | NNPDF E-Newsletter
NNPDF Blog  |  Rare Disease Day
Infiniti Coaches’ Charity Challenge  |  Fundraisers
Munkasci Article  |  Clinical Trial Updates


Board Message  |  Rare Disease Day 2017
NNPDF Blog  |  Upcoming Fundraisers
Infiniti Coaches’ Charity Challenge  |  Research Updates
Wylder Nation Update  |  Munkasci Published Paper


Research Updates  |  Memorials


October Awareness Wrap Up |  Join Our NNPDF Blog
Shop and Give | INPDR  |  Research Updates


Clinical Trials and Updates |  NNPDF Research Grant Award
Global Genes Tribute to Champions of Hope
October 2016 Global Niemann-Pick Disease Awareness Month


Family Conference Recap  |  2016 NNPDF Board Meeting


Family Conference Information  |  Clinical Trial Updates
FDA Overview  |  INPDA Update  |  Global Genes RARE
NORD Update  |  2016 NNPDF Board Meeting


Family Conference Information  |  NNPDF Webinar Recording
Fundraising  |  Research Updates  |  RFA Update
NEWS  |  2016 NNPDF Board Meeting


Give the “Gift of Hope”  |  iGive.com  |  Goodshop  |  Amazon Smile
Bravelets & Awareness Beads  |  Persevere Wristbands  |  PersevereWEAR


Board of Directors  |  2016 Family Conference
Research Applications  |  Clinical Trial Updates


Give the “Gift of Hope”  |  iGive.com  |  Goodshop  |  Amazon Smile
Bravelets & Awareness Beads  |  Persevere Wristbands  |  PersevereWEAR


INPDA Meeting  |  2015 Global October Awareness
National Family Caregiver Month  |  Giving Tuesday 2015  |  PersevereWear
Clinical Trial Recruitment  |  Reminder from Chris Klauer


Global October Awareness Month  |  2015 Family Conference Recap
Clinical Trials: Updates and Recruitments
NNPDF Fellowship Progress Reports


2015 Family Conference  |  Research and Clinical Trial Updates
Global October Awareness Month  |  Reminder from Chris Klauer


2015 Family Conference   |  Equipment Exchange Update
Research & Clinical Trial Updates
Reminder from the Family Services and Marketing Coordinator
NNPDF Facebook Page


2015 Family Conference  |  Equipment Exchange Update
Research & Clinical Trial Updates
Reminder from the Family Services and Marketing Coordinator


2015 Family Conference  |  Development Committee Update
2015 NPC Parseghian Conference  |  NNPDF Membership Registration
INPDA Website  |  Research & Clinical Trial Updates


2015 Family Conference  |  Board of Directors Update
NNPDF Membership Registration  |  NNPDF Fellowship Progress Reports
Research & Clinical Trial Updates  |  Fundraising = Recipe for Success


2015 Family Conference   |  2015 NNPDF Board and Staff
NNPDF Fellowship Application Deadline
Clinical Trial Updates  |  Equipment Exchange


2015 Family Conference   |  $100,000 For NPC
World Rare Disease Day 2015
2015 NNPDF Board Meeting


World Rare Disease Day  |  WORLD Symposium 2015
Expanded Access – Compassionate Use
Webinar ~ Young Adult Patients Transition to Medicare
Infiniti Coaches Challenge  |  2015 NNPDF Annual Board Meeting


Vtesse Announcement  |  Clinical Trial Updates
Infiniti Coaches Charity Challenge
2015 NNPDF Annual Board Meeting


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