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Foundation NewsLine

Foundation NewsLine


 

Community

Posted by on Jul 3, 2018 in Foundation NewsLine, Type A, Type B, Type C | Comments Off on Community

I have been struck by the phrase “community” over the past few weeks.  We use this word to describe the families, adults, children, caregivers, friends, researchers, healthcare providers and others affected by Niemann-Pick disease.  The word itself implies a unique togetherness. It is a group drawn together by the need for a cure, commonalities and shared challenges. I’ve joined this community to help fulfill the vision and mission of NNPDF.  One of the priorities identified and clearly needed is a family services and support program.  To...

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June 2018 Newsletter

Posted by on Jun 21, 2018 in Foundation NewsLine, Type A, Type B, Type C | Comments Off on June 2018 Newsletter

June 2018 Newsletter

The NNPDF June 2018 Newsletter is now available. Just follow this...

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May 2018 Newsletter

Posted by on May 29, 2018 in Foundation NewsLine, Type A, Type B, Type C | Comments Off on May 2018 Newsletter

May 2018 Newsletter

The May 2018 NNPDF Newsletter is now available. Just follow this...

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CTD Holdings Press Release

Posted by on Apr 30, 2018 in Foundation NewsLine, Type C | Comments Off on CTD Holdings Press Release

PRESS RELEASE FROM CTD HOLDINGS CTD Holdings:  FDA Authorizes CTD to Proceed with Extension Protocol to US Phase I Trappsol® Cyclo™ Trial for Niemann-Pick Disease Type C. CLICK HERE for the complete...

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NNPDF April 2018 Newsletter

Posted by on Apr 19, 2018 in Foundation NewsLine, Type A, Type B, Type C | Comments Off on NNPDF April 2018 Newsletter

NNPDF April 2018 Newsletter

The NNPDF April 2018 Newsletter is now available. Follow this...

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CTD Holdings Press Release

Posted by on Mar 29, 2018 in Foundation NewsLine, Type C | Comments Off on CTD Holdings Press Release

CTD Holdings Press Release

PRESS RELEASE FROM CTD HOLDINGS CTD Holdings Conducts Initial Review of Safety Data for its Phase I and Phase I/II Trials of Trappsol® Cyclo™ to Treat Niemann-Pick Disease Type C. CLICK HERE for the complete...

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March 2018 Newsletter

Posted by on Mar 21, 2018 in Foundation NewsLine, Type A, Type B, Type C | Comments Off on March 2018 Newsletter

March 2018 Newsletter

The March 2018 NNPDF Newsletter is now available. Follow this...

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February 2018 Newsletter

Posted by on Feb 22, 2018 in Foundation NewsLine, Type A, Type B, Type C | Comments Off on February 2018 Newsletter

February 2018 Newsletter

The February 2018 NNPDF Newsletter is now available online. Just follow this...

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Jennifer Rondon

Posted by on Jan 29, 2018 in Foundation NewsLine, Type A, Type B, Type C | Comments Off on Jennifer Rondon

Jennifer Rondon

Please join the NNPDF community in sharing our heartfelt condolences to the family of Jennifer Rondon.

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January 2018 Newsletter

Posted by on Jan 23, 2018 in Foundation NewsLine, Type A, Type B, Type C | Comments Off on January 2018 Newsletter

January 2018 Newsletter

The NNPDF January Newsletter is now available. Just follow this link nnpdf.org/january-2018-newsletter/.  ...

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