Infinity Coaches’ Charity Challenge to raise money for NPC Research
Last year Purdue’s Matt Painter represented the Smith Family BReaK Thru Fund and all those impacted by Niemann-Pick Type C Disease and he won the challenge and $100K for NPC research. This year he is representing NPC again and we want to help him to win! All you have to do is go to the link below and vote for Coach Painter very day. There are multiple rounds so keep voting. Tell you friends to vote! Get the word out!
Recent Publications Tied to NPC
Below are two links to recent publications from a British Journal titled “Developmental Medicine & Child Neurology” regarding Niemann-Pick Type C.
- Cohort study of neurocognitive functioning and adaptive behaviour in children and adolescents with Niemann-Pick Disease type C1
- Cognitive trajectories in rare neurogenetic diseases: minding the gaps in filling the potholes
I welcome all calls, e-mails and Facebook inquires and look forward to hearing from all our family membership of the NNPDF and CCNNPDF.
Enjoy the weekend,
NNPDF Family Support and Marketing Coordinator
P: 920-563-0930; E-mail: email@example.com