Fundraising and Awareness Events
Fundraising and NPD Awareness Events
Don’t forget to let us know about your fundraising or awareness events as soon as you have the date! The NNPDF Central Office can help you out. Just check out the Fundraising and NPD Awareness Services Plan.
Thanks 4 Giving
Thanks $4 Giving is an annual November fundraiser sponsored by Chase the Cure. To participate, your family sends out donation request postcards (provided by Chase the Cure), or emails to family and friends. Proceeds sent to Chase the Cure benefit the NNPDF, Parseghian Foundation, and other research organizations.
Contact Debbie Kaflowitz by Friday, October 30th for detailed participation information.
Over five years ago the faculty and staff of the Woodcliff Lake School District began raising money for the National Niemann-Pick Disease Foundation. When the children of one of our teachers were diagnosed with this rare disease we, as a community, were looking for a way to help. We began small at first just accessing the faculty and staff of our small district. Staff were permitted to wear jeans on a Friday in February for a $5 donation.
Over the years, our fundraising efforts/awareness campaign have grown. We have sold T-shirts to staff, increased the amount of jeans days, and included public service announcement videos teaching students about rare diseases on Fridays in February – with the final Friday focusing on Niemann-Pick Disease. Through these efforts, we have raised and donated over $4000.00 to the National Niemann-Pick Disease Foundation.
Our plan this year was to expand our fundraising efforts to include our students and the local community. Unfortunately, COVID 19 disrupted our fundraising efforts this year and we were forced to reschedule our planned event to the fall. We look forward to creating new and engaging ways to raise money and awareness for this worthy cause.
Dreams for Dillon – Inspiring young people to use their gifts and talents for good
Kate is an Urbana resident and a sophomore at Urbana High School. She was crowned Miss Urbana’s Outstanding Teen 2020 this past November and is now on a journey to become Miss Maryland’s Outstanding Teen 2020 and Miss America’s Outstanding Teen 2020. Kate has a passion for dance and loves performing with the Urbana Dance Studio. She is planning to study medicine and to ultimately obtain a profession as a pediatrician.
Kate’s platform is Dreams for Dillon, where she hopes to raise awareness of Niemann-Pick Disease, raise funds for the people working toward a cure, all while sharing the message that not everyone has the same abilities and gifts, so they should take advantage of their own gifts and talents and use them to be their best self and to give back to others. Kate’s friend Dillon Papier didn’t have that opportunity because the Niemann-Pick disease took his abilities from him. An excerpt from her platform reads, “As Miss Maryland’s Outstanding Teen, I will have the opportunity to reach a wider audience, build greater awareness, and increase the likelihood of finding a cure for kids like Dillon all while spreading the very important message that all young people should use their gifts and talents to make the world a better place and be their best self.” Kate is excited for the year ahead as she educates others about how they can make a difference and inspire those in her community to believe that their voice matters.
Kate will be competing in Miss Maryland’s Outstanding Teen 2020 (June) and Miss America’s Outstanding Teen 2020 (August). The NNPDF wishes all the best to Kate in her upcoming endeavors!
Pretty in Periwinkle
Nail Wraps for Niemann-Pick Disease
Show your support in the fight against Niemann-Pick Disease with these custom Jamberry nail wraps. 30% of all sales will be donated to the National Niemann-Pick Disease Foundation for family support services. Available year round!
Contact the NNPDF Central Office at firstname.lastname@example.org.