The Foundation was established by families of Niemann-Pick children to expand research into this rare disease and provide support for other families. All board members and officers are volunteers. Members contribute their time in many areas to keep administrative costs low.
Fundraisers are organized and conducted by NNPDF members in their local communities. Your contributions support the Foundation to provide services to individuals and families affected by Niemann-Pick Disease. For more information about what we do, click here.
Over 64% of expenditures are program services, such as research grants, family support, and educational materials. The website provides a summary of the Foundation’s expenditures. Financial reports are available on request.
NNPDF is a 501(c)(3) non-profit organization. All financial support is tax deductible to the fullest extent of laws governing charitable contributions.