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Posted by on Nov 25, 2014 in Foundation NewsLine |

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Dear NNPDF Families and Friends,
Our goal is to open up further avenues of communication between the NNPDF Central Office and all those battling with Niemann-Pick Disease, whether family, friend or patient. With the majority of day to day interactions occurring via smart phones and tablets, it makes the most sense that communities are turning to social media web sites for news and other media outlets due to their popularity and ease of use. 
We would like to encourage our NNPDF community to follow us on Twitter and Like us on Facebook so you are ensured to receive accurate and timely posts with the most recent NPD related news and clinical trial updates. Share our pages with your own followers and help our NPD community and families to reach a larger audience.
It is our hope that as we expand in the social media networks the NNPDF and our family membership will benefit by raising awareness and promoting online giving in support of our programs and research. In addition, it is our goal that families diagnosed in the future, who may not know where to turn, can more readily find their way into our unique and supportive community. 
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