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Navigating Together

Navigating Together: Support for all phases of Niemann-Pick Disease

NNPDF is continuously working to meet the needs of our community. An area of need that we hope to help support are those surrounding loss (bereavement) and loss related to the Niemann-Pick Disease diagnosis.

NNPDF Family Services is offering a new direct services program to help immediate family members process the complexities related to the realities of loss on multiple levels.

Our program will include small group sessions for bereavement and loss (via Zoom online platform) led by a licensed professional trained in grief counseling. It will be free of charge for NNPDF community members and will require a 8 session commitment.

Navigating Together sessions will be held for ASMD and NPC families. Sessions and times will be determined as we receive applications and participate availability. Sessions may include: late Onset NPC, Legacy Families, and Newly Diagnosed Families.

If you would like to apply to participate in one of the Navigating Together Sessions, please complete the application here by November 17th.

If you have any questions or would like more information about Navigating Together, please contact Laurie Turner, Family Services Manager at familyservices@nnpdf.org or 603-413-8707.