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Families Helping Families

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The NNPDF Families Helping Families support program offers assistance to NPD families who wish to donate supplies and gently used equipment to other NPD families in need. Our goal is to ensure that all NPD families have access to the equipment or supplies that they may need to assist their loved ones affected by Niemann-Pick Disease. This page also offers resources for adaptive equipment, appliances and more.


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AVAILABLE EQUIPMENT and SUPPLIES .


Equipment and Supply Exchange

Do you have equipment or supplies to share or may be in need of? As NPD patient and family needs change, equipment or supplies may become available that could be used by another family. The NNPDF assists families who wish to donate their equipment or supplies to help others in need. The foundation will post descriptions of equipment and supplies available and facilitate any equipment requests.


How the program works:

Anyone who has equipment or supplies to donate to the program, or who has a need, should complete and submit a Donation/Request Form.

Due to the cost of shipping, participation in this program is limited to residents of North America. Families with a member affected by Niemann-Pick Disease who live outside North America may contact us and we may be able to make referrals to other sources for equipment or supply needs.

For equipment/supplies to be donated, fill out the Donation/Request Form and fax or email it to the NNPDF office. Be sure to provide model numbers, a Web link to the product (photo and description) if possible, and any relevant measurements or details so that families will know specifically what is available, and for what size of child/adult it is appropriate. Include a digital photograph of the equipment if you can so we can post it on our website. Also, please include condition information on the item – use terms such as “new”, “like new”, “gently used”, “used”, “well-used”. Please do not offer items that are heavily soiled or are very worn. Be sure to provide full contact information so that an NNPDF staff member can contact you if there is question about, or a request for your item. The item will be posted on this page. Posting time will not be limited. Your contact and other information WILL NOT be posted on the NNPDF web site.

Families who have equipment/supply needs should complete the Donation/Request Form and fax or email it to the NNPDF office. Please be as specific as possible when describing needs.

The NNPDF will facilitate communication among families donating and families needing items when necessary. We are partnering with local and national distribution services to assist with shipping equipment to and from families at little or no cost. Call the NNPDF Central Office at 920-563-0930 or send an e-mail to nnpdf@nnpdf.org if you have questions about the program or need assistance with donations and/or requests. Completed forms may be faxed to the NNPDF Office at: 920-563-0931.

EQUIPMENT DONATION/REQUEST FORM



Available Equipment and Supplies

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Thick-It 2 – Food & Beverage Thickener

A family of the NNPDF has several jugs of Thick-It 2, instant food and beverage thickener (concentrated powder) they would like to donate. Available are 2 unopened, 36 oz. jugs, along with several others that have been opened and partially poured into smaller individual containers for easier portability.

Please contact the NNPDF at nnpdf@nnpdf.org if you are interested. 


Supplies

Supplies available: 2 boxes of gloves: size medium and size large.

Please contact the NNPDF at nnpdf@nnpdf.org if you are interested. 


Shower Chair

This shower chair fits in a regular bathtub or shower stall and has adjustable legs. There is no seat belt so child/adult needs to be able to sit in the chair unassisted.

Please contact the NNPDF at nnpdf@nnpdf.org if you are interested. 

1/16/2018 jjb

Invacare Trapeze Bar

Invacare Fixed Offset Trapeze Bar is designed specifically for Invacare G-Series Beds. The Trapeze attaches directly to the bed’s headboard. An important patient room accessory designed to help patients change positions while in bed, and aid in the transfer from bed to chairs with minimum attendant assistance.

The Trapeze easily adjusts in height to fit individual comfort and functionality. The soft to grip handle and can be centered directly over patient to make it easy to use. Handle adjusts from 20″ to 26.5″ above the deck of the bed. With a standard 6″ mattress the handle has a range of 14″-20.5″ above the mattress. 250-lb weight capacity.

Please contact the NNPDF at nnpdf@nnpdf.org if you are interested. 

5/15/2018 jjb

Rifton Pacer 502

rifton pacer 502

Designed for a wide range of varying abilities, Rifton Pacer gait trainers are renowned for their modular design, durability, and flexibility. When appropriately supported and positioned in a Pacer, people of all ages have enjoyed independence and improved strength.

This item is a medium model (24-34″) and has a weight limit of 150 lbs.

Please contact the NNPDF at nnpdf@nnpdf.org if you are interested. 

10/01/2015 jjb

Crocodile Walker – Size 2
Condition: Used – Like New

snug seat croc gait sz2

For children ages 8 to 14 years old, the Crocodile walker size 2 is designed with an easy-to-fold, lightweight frame. The Crocodile walker is a highly versatile piece of adaptive equipment that may be a perfect solution for children with varying levels of walking abilities.

This walker will support up to 99 lbs. (45 kg); Maximum target height is 59″ (150 cm).

Please contact the NNPDF at nnpdf@nnpdf.org if you are interested. 

10/01/2015 jjb

Resources for Adaptive Equipment

Visit the Pinterest Board on the Laffoon family’s blog for lots of great ideas and products to help keep kids with reduced mobility, low muscle tone, or other special needs comfy and stimulated.

The following is a list of online resources for various adaptive equipment and appliances. Appearance on this list does not indicate endorsement by the NNPDF. Many additional companies are available by searching online using the keywords indicated.

Accessible Vans

Airway Clearance Vests

Incontinence Supplies

Lifts

Medical Backpack

  • Mighty Pack  Medical backpack designed for patients, by patients. If you’ve been trying to jam your medical supplies and personal belongings altogether, the Mighty Pack holds your medical supplies and personal belongings altogether in a discreet and stylish way. This backpack is perfect for wheelchair users, as it has multiple strap locations to allow for flexibility.

Ramps

Standing equipment

  • EasyStand  This might be an item for schools or PT/OT who would like to purchase for the neuromuscular client.
  • Stand Aid  This product might be considered for the person who still has some mobility for a toilet session all the way up to passive standing which helps in circulation.
  • Redman Power Chair  This is a wonderful chair that goes into many different positions from upright/standing to full recline without the need for other chairs that do some but not all.
  • SpinLife  Standing aids.
  • AbleData  Site is good source of information about equipment for all needs.

01/23/2019 jjb
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