Pages Menu
Categories Menu

Special Equipment and Resources

Special Equipment and Resources

EQUIPMENT                   RESOURCES


NNPDF Equipment Exchange Program

Do you have equipment needs, or equipment to share?

As NPD patient and family needs change, equipment may become available that could be used by another family. The NNPDF assists families who wish to donate this equipment to help others in need. Our goal is to ensure that all NPD families have access to equipment that they need to assist their loved ones affected by Niemann-Pick Disease.

The foundation will post descriptions of equipment available and facilitate any equipment requests.

Here’s how the program works:

Anyone who has equipment to donate to the program, or who has a need for equipment, should complete and submit a Equipment Donation/Request Form.

Due to the cost of shipping, participation in this Equipment Exchange program is limited to residents of North America. Families with a member affected by Niemann-Pick Disease who live outside North America may contact us and we may be able to make referrals to other sources for equipment needs.

For equipment to be donated, fill out the Equipment Donation/Request Form and fax or email it to the NNPDF office. Be sure to provide model numbers, a Web link to the product (photo and description) if possible, and any relevant measurements or details so that families will know specifically what is available, and for what size of child/adult it is appropriate. Include a digital photograph of the equipment if you can so we can post it on our website. Also, please include condition information on the item – use terms such as “new”, “like new”, “gently used”, “used”, “well-used”. Please do not offer items that are heavily soiled or are very worn. Be sure to provide full contact information so that an NNPDF staff member can contact you if there is question about, or a request for your item. The item will be posted on this page. Posting time will not be limited. Your contact and other information WILL NOT be posted on the NNPDF web site.

Families who have equipment needs should complete the Equipment Donation/Request Form and fax or email it to the NNPDF office. Please be as specific as possible when describing equipment needs.

The NNPDF will facilitate communication among families donating equipment and families needing equipment when necessary. We are partnering with local and national distribution services to assist with shipping equipment to and from families at little or no cost. Call the NNPDF Central Office at 920-563-0930 or send an e-mail to if you have questions about the program or need assistance with donating and/or requesting equipment. Completed forms may be faxed to the NNPDF Office at: 920-563-0931.


Equipment Available – Looking for a New Home

Safety 1st – Bed Rail

Bed rail clamps around and over the top of the mattress so there’s no possibility of a gap. Measures approximately 40” long x 26” high at shortest adjustment. Guard measures 15” in height from top of mattress. Adjustable for mattresses up to 10” thick. Rail feet can either go between box spring and mattress or under box spring. Top bar is slightly bent. Panel folds down to allow for easy bed making. Not for use with toddler beds.

Pediatric Stroller
Convaid – Rodeo Tilt

This Convaid Rodeo Tilt Pediatric Stroller is the transit model w/all attachments for bus transport, etc. Also includes a tray. Seat width is 14″, weight capacity is 100 lbs. All original paperwork is available for additional questions.

Shower Chair/Commode Combo


This shower chair/commode combo has been used and is being offered to a family in need of one to make life a bit easier.

Rifton Pacer 502
Condition: Used

rifton pacer 502

Designed for a wide range of clients with varying abilities, Rifton Pacer gait trainers are renowned for their modular design, durability, and flexibility. When appropriately supported and positioned in a Pacer, thousands of people of all ages have enjoyed independence and improved strength and confidence.

This item is a medium model (24-34″) and has a weight limit of 150 lbs. Click here for additional product information.

Snug Seat Crocodile Gait Trainer Size 2
Condition: Used – Like New

snug seat croc gait sz2

For children ages 8 to 14 years old, the Crocodile gait trainer size 2 is expertly designed with an easy-to-fold, lightweight frame that is durable and rugged, yet sleek and attractive. The Crocodile gait trainer is a highly versatile piece of adaptive equipment that may be a perfect solution for schools or therapy clinics that need a device they can use for children with varying levels of walking abilities.

This gait trainer will support up to 99 lbs. (45 kg); Maximum target height is 59″ (150 cm). Click here for additional product information.

Resources for Adaptive Appliances

Pinterest Board  Visit this page on the Laffoon family’s blog for lots of great ideas and products to help keep kids with reduced mobility, low muscle tone, or other special needs comfy and stimulated.

The following is a list of online resources for various adaptive appliances. Appearance on this list does not indicate endorsement by the NNPDF. Many additional such companies are available by searching online using the keywords indicated.

Accessible Vans

Airway Clearance Vests


Standing equipment

  • EasyStand  This might be an item for schools or PT/OT who would like to purchase for the neuromuscular client
  • Stand Aid  This product might be considered for the person who still has some mobility for a toilet session all the way up to passive standing which helps in circulation
  • Redman Power Chair  This is a wonderful chair that goes into many different positions from upright/standing to full recline without the need for other chairs that do some but not all.
  • SpinLife  This is an all-terrain wheelchair for snow, sand, gravel etc. This might be useful for the family that wants to keep up with other sports the family enjoys.
  • AbleData  Site is good source of information about equipment for all needs.


Incontinence Supplies

03/16/2017 jjb