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Special Equipment and Resources

Special Equipment and Resources


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AVAILABLE EQUIPMENT

EQUIPMENT DONATION/REQUEST FORM

RESOURCES FOR ADAPTIVE EQUIPMENT    EQUIPMENT SUCCESSFULLY REGIFTED


NNPDF Equipment Exchange Program

Do you have equipment needs, or equipment to share?

As NPD patient and family needs change, equipment may become available that could be used by another family. The NNPDF assists families who wish to donate this equipment to help others in need. Our goal is to ensure that all NPD families have access to equipment that they need to assist their loved ones affected by Niemann-Pick Disease.

The foundation will post descriptions of equipment available and facilitate any equipment requests.


Here’s how the program works:

Anyone who has equipment to donate to the program, or who has a need for equipment, should complete and submit a Equipment Donation/Request Form.

Due to the cost of shipping, participation in this Equipment Exchange program is limited to residents of North America. Families with a member affected by Niemann-Pick Disease who live outside North America may contact us and we may be able to make referrals to other sources for equipment needs.

For equipment to be donated, fill out the Equipment Donation/Request Form and fax or email it to the NNPDF office. Be sure to provide model numbers, a Web link to the product (photo and description) if possible, and any relevant measurements or details so that families will know specifically what is available, and for what size of child/adult it is appropriate. Include a digital photograph of the equipment if you can so we can post it on our website. Also, please include condition information on the item – use terms such as “new”, “like new”, “gently used”, “used”, “well-used”. Please do not offer items that are heavily soiled or are very worn. Be sure to provide full contact information so that an NNPDF staff member can contact you if there is question about, or a request for your item. The item will be posted on this page. Posting time will not be limited. Your contact and other information WILL NOT be posted on the NNPDF web site.

Families who have equipment needs should complete the Equipment Donation/Request Form and fax or email it to the NNPDF office. Please be as specific as possible when describing equipment needs.

The NNPDF will facilitate communication among families donating equipment and families needing equipment when necessary. We are partnering with local and national distribution services to assist with shipping equipment to and from families at little or no cost. Call the NNPDF Central Office at 920-563-0930 or send an e-mail to nnpdf@nnpdf.org if you have questions about the program or need assistance with donating and/or requesting equipment. Completed forms may be faxed to the NNPDF Office at: 920-563-0931.

EQUIPMENT DONATION/REQUEST FORM



Equipment Available – Looking for a New Home



Invacare Trapeze Bar

Invacare Fixed Offset Trapeze Bar is designed specifically for Invacare G-Series Beds. The Trapeze attaches directly to the bed’s headboard. An important patient room accessory designed to help patients change positions while in bed, and aid in the transfer from bed to chairs with minimum attendant assistance.

The Trapeze easily adjusts in height to fit individual comfort and functionality. The soft to grip handle and can be centered directly over patient to make it easy to use. Handle adjusts from 20″ to 26.5″ above the deck of the bed. With a standard 6″ mattress the handle has a range of 14″-20.5″ above the mattress. 250-lb weight capacity.

Please contact the NNPDF at nnpdf.org if you are interested. 


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Compression Vests

We have 2 RespirTech – ClearChest model compression vests available. Comfort band style, size medium with adjustable band. Family states one is a smaller version. For more information contact the NNPDF central office at nnpdf@nnpdf.org.

02/19/2018 jjb

Safety 1st – Bed Rail

Bed rail clamps around and over the top of the mattress so there’s no possibility of a gap. Measures approximately 40” long x 26” high at shortest adjustment. Guard measures 15” in height from top of mattress. Adjustable for mattresses up to 10” thick. Rail feet can either go between box spring and mattress or under box spring. Top bar is slightly bent. Panel folds down to allow for easy bed making. Not for use with toddler beds.

11/28/2017 jjb

Shower Chair/Commode Combo

shower-chair

This shower chair/commode combo has been used and is being offered to a family in need of one to make life a bit easier.

09/09/2016 jjb

Rifton Pacer 502

rifton pacer 502

Designed for a wide range of varying abilities, Rifton Pacer gait trainers are renowned for their modular design, durability, and flexibility. When appropriately supported and positioned in a Pacer, people of all ages have enjoyed independence and improved strength.

This item is a medium model (24-34″) and has a weight limit of 150 lbs.

10/01/2015 jjb

Crocodile Walker – Size 2
Condition: Used – Like New

snug seat croc gait sz2

For children ages 8 to 14 years old, the Crocodile walker size 2 is designed with an easy-to-fold, lightweight frame. The Crocodile walker is a highly versatile piece of adaptive equipment that may be a perfect solution for children with varying levels of walking abilities.

This walker will support up to 99 lbs. (45 kg); Maximum target height is 59″ (150 cm).

10/01/2015 jjb

Resources for Adaptive Equipment

Pinterest Board  Visit this page on the Laffoon family’s blog for lots of great ideas and products to help keep kids with reduced mobility, low muscle tone, or other special needs comfy and stimulated.

The following is a list of online resources for various adaptive equipment and appliances. Appearance on this list does not indicate endorsement by the NNPDF. Many additional such companies are available by searching online using the keywords indicated.

Accessible Vans

Airway Clearance Vests

Ramps

Standing equipment

  • EasyStand  This might be an item for schools or PT/OT who would like to purchase for the neuromuscular client.
  • Stand Aid  This product might be considered for the person who still has some mobility for a toilet session all the way up to passive standing which helps in circulation.
  • Redman Power Chair  This is a wonderful chair that goes into many different positions from upright/standing to full recline without the need for other chairs that do some but not all.
  • SpinLife  Standing aids.
  • AbleData  Site is good source of information about equipment for all needs.

Lifts

Incontinence Supplies


03/16/2017 jjb