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Insurance and Access

Insurance and Access


NNPDF Health Insurance Survey:

Understanding Health Insurance Literacy and Challenges in Accessing Health Services in Niemann-Pick Disease Through the Eyes of Patients and Families

NNPDF is conducting a survey of the U.S, Niemann-Pick Disease community to further understand the patient and healthcare provider experience in Niemann-Pick as it relates to health insurance knowledge, coverage, as well as the challenges experienced by patients and their families pertaining to access of medications, services and devices.

Who can participate? Niemann-Pick patients 18 years of age and older or their parents. This is not the full list of eligibility criteria. Find out if you qualify and get more information on this study by visiting Understanding Health Insurance Literacy and Challenges in Accessing Health Services in Niemann-Pick Disease Through the Eyes of Patients and Families.

A $100 honorarium is available to participants.

Why is this important? This important survey will identify health insurance usage, access, and barriers across the country. The survey will also allow us to better understand where the community may need more tools or assistance in understanding the complexities of health insurance. The data gathered from this national survey will provide a credible quantitative platform for NNPDF when speaking with legislators, key opinion leaders, and media about access to medications, pricing, economic impact, or legislative reform. This is the most comprehensive survey of the Niemann-Pick health insurance landscape to be conducted in the U.S.

Learn more here.

Question? Contact Joslyn Crowe, Executive Director.