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December 2016 Newsletter



Research Updates

Following are research updates that we have received in the NNPDF Central Office since our last newsletter in November.


Niemann-Pick Parkinson’s Research Study for
ASMD Patients and First Degree Family Members

CLICK HERE for more information
on how to take part in this research study.


Phase 2/3 Second Site Opens

PRO Study Still Recruiting Patients

First Annual Sanofi Genzyme TORCH Award


Rare Pediatric Disease Designation by the FDA


AIDNPC Clinical Programme Updates in Several Languages


As the year comes to an end the NNPDF is keeping all of our families in our thoughts now and throughout the year.



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