Pages Menu
Categories Menu

Posted by on Oct 28, 2014 in Foundation NewsLine |

Day 28 ~ October 2014 as GLOBAL NPD Awareness Month ~ Think Again. Think NPC.

Dear NNPDF Families and Friends,
A major hurdle we learn of time and again from our NNPDF family membership is the challenge to a diagnosis. Due to this, Niemann-Pick Type C takes, on average, five years to diagnose. Because NPC is treatable this means that patients live for five years without treatment or access to support. 
Think Again. Think NP-C is a campaign identified and developed by the International Niemann-Pick Disease Alliance (INPDA), co-founded by the National Niemann-Pick Disease Foundation (NNPDF), to reduce the time to diagnosis by supporting healthcare professionals who are unfamiliar with NP-C to recognize the key signs and symptoms of the disease. This will help patients by speeding up diagnosis so patients can access treatment and support. 
Early diagnosis means patients can access support, which can improve their quality of life and the lives of those around them. Early diagnosis is also important as NP-C is a treatable disease. Treatment can help to manage the symptoms and can slow down the progression of the disease. 
Visit the NNPDF Newsline web page to learn more:


Please spread the word!