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It’s Rare Disease Day!

Every year on Rare Disease Day the spotlight is placed firmly on all rare diseases, giving us the opportunity to come together to further collective awareness and look...

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ADVOCACY

Dr. Marc C. Patterson, member of NNPDF’s Advisory Committee recently testified at the U.S. Senate Committee Hearing on Health, Education, Labor, and Pensions. At the...

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Congratulations Dr. Patterson!

Congratulations to Dr. Marc Patterson on being selected as this year’s recipient of the Persevere Award! The NNPDF is proud to have Dr. Patterson as member of its...

Posted by National Niemann-Pick Disease Foundation |

NNPDF Pinterest Page

Did you know that NNPDF now has a Pinterest page? Follow us at pinterest.com/niemannpick for helpful resources on genetic testing, traveling, awareness videos and more....

Posted by National Niemann-Pick Disease Foundation |

Community

I have been struck by the phrase “community” over the past few weeks. We use this word to describe the families, adults, children, caregivers, friends, researchers,...

Posted by National Niemann-Pick Disease Foundation |

June 2018 Newsletter

The NNPDF June 2018 Newsletter is now available. Just follow this link nnpdf.org/june-2018-newsletter/ Share...

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The National Niemann-Pick Disease Foundation (NNPDF) does not engage in the practice of medicine. It is not a medical authority nor does it claim to have medical knowledge. This site is an educational service of the National Niemann-Pick Disease Foundation and is not meant to provide diagnostic or treatment advice. Information contained or suggested on this Web site does not constitute medical advice. For all information related to care, medication or treatment, the NNPDF recommends consulting a physician to determine if information presented is applicable. Please review these additional cautions about medical information provided on the Internet.

This Web site is a service of the National Niemann-Pick Disease Foundation's Family Services Program, made possible by the financial support of our member families and other generous donors and grantors. This site receives no government funding, nor does it host or receive funding from advertising or from the display of commercial content.

The National Niemann-Pick Disease Foundation is a 501(c)(3) organization. Your donations are fully tax-deductible.

It’s Rare Disease Day!

ADVOCACY

Congratulations Dr. Patterson!

NNPDF Pinterest Page

Community

June 2018 Newsletter

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