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Message from the Executive Director

Message from the Executive Director . Dear Friends and Families, October Awareness was a flurry of activity. We had video posts, a day of giving, the new INPDA...

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INPDA October 2019 Newsletter

The INPDA October 2019 Newsletter has just been published. CLICK HERE to review! Share...

Posted by jbeirl |

Message from NNPDF about Mallinckrodt Phase 2b/3 Study VTS301

An important message from NNPDF about Mallinckrodt Phase 2b.3 study VTS301 has been posted to our website, click here to read the full letter. Share...

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NNPDF Emergency Hardship Program

The NNPDF Emergency Hardship Program is now available! This program offers help to qualified NNPDF U.S. member families facing a crisis. Funding includes but is not...

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It’s Rare Disease Day!

Every year on Rare Disease Day the spotlight is placed firmly on all rare diseases, giving us the opportunity to come together to further collective awareness and look...

Posted by jbeirl |

ADVOCACY

Dr. Marc C. Patterson, member of NNPDF’s Advisory Committee recently testified at the U.S. Senate Committee Hearing on Health, Education, Labor, and Pensions. At the...

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The National Niemann-Pick Disease Foundation (NNPDF) does not engage in the practice of medicine. It is not a medical authority nor does it claim to have medical knowledge. This site is an educational service of the National Niemann-Pick Disease Foundation and is not meant to provide diagnostic or treatment advice. Information contained or suggested on this Web site does not constitute medical advice. For all information related to care, medication or treatment, the NNPDF recommends consulting a physician to determine if information presented is applicable. Please review these additional cautions about medical information provided on the Internet.

This Web site is a service of the National Niemann-Pick Disease Foundation's Family Services Program, made possible by the financial support of our member families and other generous donors and grantors. This site receives no government funding, nor does it host or receive funding from advertising or from the display of commercial content.

The National Niemann-Pick Disease Foundation is a 501(c)(3) organization. Your donations are fully tax-deductible.

Message from the Executive Director

INPDA October 2019 Newsletter

Message from NNPDF about Mallinckrodt Phase 2b/3 Study VTS301

NNPDF Emergency Hardship Program

It’s Rare Disease Day!

ADVOCACY

Blog Archive

Please spread the word!