Message from the Executive Director
Message from the Executive Director . Dear Friends and Families, October Awareness was a flurry of activity. We had video posts, a day of giving, the new INPDA...
Read More
INPDA October 2019 Newsletter
The INPDA October 2019 Newsletter has just been published. CLICK HERE to...
Read MoreNNPDF Emergency Hardship Program
The NNPDF Emergency Hardship Program is now available! This program offers help to qualified NNPDF U.S. member families facing a crisis. Funding includes but is not...
Read MoreNational Volunteer Week
Volunteers are essential in the progress of Niemann-Pick Disease awareness and your NNPDF organization! Members of the NNPDF Board volunteer selflessly to serve in...
Read More
Jeff Bebout – ASMD Story
NNPDF community member Jeff Bebout was born with an enlarged spleen and liver and it wasn’t until the age of three that he was diagnosed with Acid Sphingomyelinase...
Read More
It’s Rare Disease Day!
Every year on Rare Disease Day the spotlight is placed firmly on all rare diseases, giving us the opportunity to come together to further collective awareness and look...
Read More