National Volunteer Week
Volunteers are essential in the progress of Niemann-Pick Disease awareness and your NNPDF organization! Members of the NNPDF Board volunteer selflessly to serve in...
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Jeff Bebout – ASMD Story
NNPDF community member Jeff Bebout was born with an enlarged spleen and liver and it wasn’t until the age of three that he was diagnosed with Acid Sphingomyelinase...
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It’s Rare Disease Day!
Every year on Rare Disease Day the spotlight is placed firmly on all rare diseases, giving us the opportunity to come together to further collective awareness and look...
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Justin Hopkin’s Niemann-Pick Journey
Have you ever wondered about Justin Hopkin’s Niemann-Pick journey? Justin shares his story during the NPUK Conference in September. Watch our Board Chair’s...
Read MoreCongratulations Dr. Patterson!
Congratulations to Dr. Marc Patterson on being selected as this year’s recipient of the Persevere Award! The NNPDF is proud to have Dr. Patterson as member of its...
Read MoreNNPDF Pinterest Page
Did you know that NNPDF now has a Pinterest page? Follow us at pinterest.com/niemannpick for helpful resources on genetic testing, traveling, awareness videos and more....
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