August 2018 Newsletter: Family Conference
NNPDF 26th Annual Family Conference
The NNPDF 26th Annual Family Conference was held from August 2 -5 in Louisville, Kentucky. THANK YOU to all of the families, speakers, and representatives that joined us this year. It was a time of educating, sharing and fun! Each of you that attended played a part in making the event outstanding and truly special.
This year’s Conference was highlighted by sessions on Clinical Trials, Drug Development, Research Updates, Dr. Marc Patterson receiving the Persevere Award (see video here), specialist-facilitated grief support sessions, disease support breakout sessions, the International Niemann-Pick Disease Patient Registry, Family Services and Advocacy, and a Meet & Greet with Pharma.
An extra special thank you to our Activity Zone leaders and volunteers who created an energetic and caring atmosphere for the children, young adults, and siblings, complete with a performance at the Gala dinner!