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Joslyn Crowe, MSW, MA
Executive Director

Joslyn Crowe brings more than 15 years of experience in patient engagement to her role at NNPDF. In this capacity, Joslyn has worked with pharmaceutical companies, including Pfizer and Abbott, on advocacy initiatives and market access strategies in the US and internationally. Her expertise in cultivating sustainable partnerships between Industry and patient organizations to ensure access to medicines has been a hallmark of her success. In these roles, she has assisted nonprofits to build their organizational capacity and helped support developing family services programs to enhance their capacity to support and empower families. 

Joslyn’s passion for rare disease began while working to bring a medication for Gaucher disease to market and gave her new insight into the unique needs of rare disease patients and their families.

Joslyn’s work on patient advocacy initiatives include state-based legislative issues that support patients, informational and social media awareness campaigns that highlight specific diseases along with patient needs, and securing the inclusion of key topics in the White House Conference on Aging.

Previously, Joslyn served as Associate Director of Hadassah International, a medical relief association, responsible for fundraising, programming, building partnerships worldwide, and creating a new young leadership division for the organization.

Joslyn is a mother of 2 young children, an avid traveler, skier, and trying to hone her cooking skills.


Laurie Turner
Family Services Manager

Chris Klauer
Office Manager

Jill Beirl
Communications & Marketing Coordinator

P.O. Box 49 |  401 Madison Avenue, Suite B  |  Fort Atkinson, WI 53538
Phone: 920-563-0930  |  Fax: 920-563-0931  |  Web:

09/08/2016 jjb